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Patients should be informed that a registry for MPS I patients has been established in order to better understand the variability and progression of MPS I disease, and to continue to monitor and evaluate treatments. Patients should be encouraged to participate and advised that their participation may involve long-term follow-up.

Information regarding the registry program may be found at www.MPSIregistry.com or by calling (800) 745-4447.

Last reviewed on RxList: 2/4/2009
This monograph has been modified to include the generic and brand name in many instances.