Canavan Disease (cont.)
In this Article
- What is Canavan disease?
- What causes Canavan disease?
- What are the symptoms of Canavan disease?
- Is there any treatment for Canavan disease?
- What is the prognosis for Canavan disease?
- What research is being done on Canavan disease?
- For more information
What is the prognosis for Canavan disease?
The prognosis for Canavan disease is poor. Death usually occurs before age 4, although some children may survive into their teens and twenties.
What research is being done on Canavan disease?
The gene for Canavan disease has been located. Many laboratories offer prenatal screening for this disorder to populations at risk. Scientists have developed animal models for this disease and are using the models to test potential therapeutic strategies. Research supported by the NINDS includes studies to understand how the brain and nervous system normally develop and function and how they are affected by genetic mutations. These studies contribute to a greater understanding of gene-linked disorders such as Canavan disease, and have the potential to open promising new avenues of treatment.
Select this link to view a list of studies currently seeking patients.
For more information
450 West End Avenue
New York, NY 10024
Tel: 212-873-4640 877-4-CANAVAN (422-6282)
Canavan Research Foundation
88 Route 37
New Fairfield, CT 06812
Canavan Disease Research
P.O. Box 8194
Rolling Meadows, IL 60008-8194
4301 Connecticut Avenue, N.W.
Washington, DC 20008-2369
Tel: 202-966-5557 800 336-GENE (4363)
National Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Brighton, MA 02135
Tel: 617-277-4463 800-90-NTSAD (906-8723)
United Leukodystrophy Foundation
2304 Highland Drive
Sycamore, IL 60178
Tel: 815-895-3211 800-728-5483
SOURCE: National Institute of Neurological Disorders and Stroke, National Institutes of Health
Last Editorial Review: 10/29/2008
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