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Coats' Disease (cont.)

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Where can people with Coats' disease get support?

Due to its rarity, it is necessary to go to general vision-loss groups for support.

Since it is usually unilateral, the individual with Coats' disease is able to carry on a normal lifestyle with minimal disability. The ophthalmologist should be able to answer most questions and should know about any vision support groups which might be of help.

Where can people get more information about Coats' disease?

Some sources of information:

The Jack McGovern Coats Disease Foundation
http://www.coatsdiseasefoundation.org
Coatsdiseasefoundation@gmail.com

The Coats' Disease web site has a wealth of information about the disease for families.
http://www.coatsdisease.org/index.html

ClinicalTrials.gov
http://www.clinicaltrials.gov/ct/show/NCT00470977?order=1

Medically reviewed by Margaret Walsh, MD; American Board of Pediatrics

REFERENCES:

Coats, G. "Ueber Retinitis Exudativa (Retinitis Haem-orrhagica Externa)." Graefe's Arch. Ophthalmol. 81 (1912): 275-327.

Kansal, Rishav, Kiran Turaka, and Carol L. Shields. "Coats Disease: Classification and Treatment." Retina Today Apr. 2011: 55-56.

Manschot, W.A. and W.C. de Bruijn. "Coats' Disease: Definition and Pathogenesis." Br. J. Ophthalmol. 51 (1967): 145-157.

Morris, B., B. Foot, and A. Mulvihill. "A Population-Based Study of Coats Disease in the United Kingdom I: Epidemiology and Clinical Features at Diagnosis." Eye 24 Dec. 2010: 1797-1801.


Medically Reviewed by a Doctor on 4/24/2014

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Source: MedicineNet.com
http://www.medicinenet.com/coats_disease/article.htm

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