July 29, 2016
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Marfan Syndrome (cont.)

Where can people find additional information about Marfan syndrome?

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearing House
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267)
TTY: 301-565-2966
Fax: 301-718-6366
E-mail: niamsinfo@mail.nih.gov
Website: www.niams.nih.gov

Other Resources

National Human Genome Research Institute (NHGRI)
National Institutes of Health
Website: www.genome.gov

NHGRI Genetic and Rare Diseases Information Center
Website: www.genome.gov

National Marfan Foundation (NMF)
Website: www.marfan.org

National Organization For Rare Disorders (NORD)
Website: www.rarediseases.org

March of Dimes Birth Defects Foundation
Website: www.marchofdimes.com

American Heart Association


The NIAMS gratefully acknowledges the assistance of the following individuals in the preparation and review of the original version of this booklet: Bernadette Tyree, Ph.D., NIAMS/ NIH; Priscilla Ciccarielo, Director Emeritus, National Marfan Foundation, Port Washington, NY; Harry C. Dietz, M.D., Johns Hopkins University School of Medicine, Baltimore, MD; Carolyn Levering and Eileen Masciale, National Marfan Foundation, Port Washington, NY; Francisco Ramirez, M.D., Mount Sinai School of Medicine of the City University of New York, NY; and Joel Rosenbloom, M.D., Ph.D., University of Pennsylvania, Philadelphia, PA.

SOURCE: National Institute of Arthritis and Musculoskeletal and Skin Diseases. Marfan Syndrome.

Last Editorial Review: 8/1/2012

Source: MedicineNet.com

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