Benlysta User Reviews

Benlysta - User Reviews

Benlysta User Reviews

Now you can gain knowledge and insight about a drug treatment with Patient Discussions.

Here is a collection of user reviews for the medication Benlysta sorted by most helpful. Patient Discussions FAQs


Comment from: LupusAdventurer, 45-54 on Treatment for 1-6 months (Patient) Published: November 03

I am 10 weeks into my treatment with Benlysta and have had 4 infusions. Slight reactions after the first treatment of fatigue, short-lasting shooting headaches and occasional dizziness for 1 week, but no reactions after the subsequent infusions. My symptoms began greatly decreasing about 2 weeks ago. I am feeling a great deal better, with less pain, more energy, improved cognition, reduced joint swelling, reduced malaise, overall feeling good for the first time in two years.

Related Reading: Benlysta | fatigue | dizziness

Comment from: Stacey, 35-44 on Treatment for 1-6 months (Patient) Published: September 27

Started with my first doses in August. I didn't have any side effects except for a metallic taste in my mouth for a few days and being really tired and run down, more then usual, for the first 48 hours after the infusion. After this past I felt wonderful. I was able to reduce and almost stop my pain medication and after seeing my doctor she stated my test results were so promising that she reduced my metho weekly dose!! I know when it is time for my next infusion because I start to experience the symptoms of this disease more. I am so happy I am taking this medication!!

Comment from: TracyKay, 35-44 on Treatment for 1-6 months (Patient) Published: November 23

Received my 4th infusion last week. Noticing less joint pain and increased range of motion. Best of all no flares. I feel more energy than I have had in 2 years and am able to stay more active. It appears to be helping me a lot. I am so grateful for this miracle drug. It's given my life back to me.

Comment from: dovecote2_, 65-74 (Patient) Published: October 22

The first infusion left me with a 3 martinis reaction. Then some nausea and very tired for a couple of days. The second was quite different in body response. Mostly just very tired and no appitite. My third is scheduled for 10/31 so I'm sure it will be intersting afterwards. No change in pain or the myriad of other lupus symptoms. Dr. said after the fifth I should start noticing small increments of relief.

Related Reading: lupus

Comment from: Lia2020, 45-54 on Treatment for 1-6 months (Patient) Published: September 15

I began Benlysta in May 2011 and on August 31, 2011 I was told that I'm in remission. I have never been in remission and I was diagnoised in 1999.

Comment from: 35-44 on Treatment for less than 1 month (Patient) Published: June 19

It is so easy to do. I have not had any side affects. Very happy with this medication.

Comment from: Jack, 55-64 Female on Treatment for less than 1 month (Patient) Published: July 31

I have received my second infusion. Both have brought severe flares such as I have not had for two years. Joints ache, stuffy sinuses and severe headache are also present. I'm so tired, that I have slept off and on between bouts of pain.

Related Reading: headache

Comment from: DJ, 45-54 on Treatment for 1-6 months (Patient) Published: June 02

I have only had the first 3 initial infusions of Benlysta, and from the very being I could feel a difference in my body. I have never had anything, other than my first steroid injection, that gave me this type of energy. I do still have days that I am not well, but not as often and I recover within a day or two, whereas it use to take up to 5 to 7 days of complete rest to get over my major flares. I am still in the beginning of this treatment, but at this point I am very happy with the results. No one should have to live the way I have for the past 15 years not knowing what day is going to be a good day or not a good day. It is like having the flu all the time living with lupus. Now I am able to get out and enjoy my life, and some days I still have energy to spare! That is a miracle.

Related Reading: flu

Comment from: anon, 45-54 Female on Treatment for 1-6 months (Patient) Published: March 31

I have had positive results from taking this . my joint pain has lessened and I have more energy and less fatigue . I am making other changes in my life with diet and exercise and don't know if they are the reason for the improvements or the Benlysta. I still experience occasional vision problems and dizziness unfortunately .


Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on RxList. The opinions expressed in the comments section are of the author and the author alone. RxList does not endorse any specific product, service or treatment.

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