CellCept replaced prednisone as treatment for autoimmune hepatitus after finding I was allergic to all normal treatments for this disease. I have had no adverse effects. Published: October 31, 2007 ::

I developed a very rare problem with swelling in the optic nerve in my eye. Tests showed it was an autoimmune problem. I was put on a steroid to reduce the swelling in the optic nerve. Imuran made me very very sick so I was put on Cellcept knowing it had never been used in any case similar to mine, but it seems to have worked very well up to this point and has gotten me off the steroid I have been on. Published: November 11, 2007 ::

My Doctor is using CellCept to treat my MG. Other Meds did not work. This works very well. Published: October 27, 2007 ::

Don't underestimate how immunocompromised this medication leaves you. Although the Cellcept was by far more effective than any other medication we tried I'm not sure it was worth it. I took 1500 mg/day and after about six months I came down with a very severe case of shingles on my head, face and eye that landed me in the hospital and affected my vision. We discontinued the Cellcept when that happened. The positives I can say for the medication are that it di help the lupus symptoms and after about a two week adjustment period of stomach pain and intermittant nausea I adjusted to it well and wasn't bothered by any more side effects. Published: April 18, 2008 ::

I'm losing my hair. Wanted some info on this. Published: September 21, 2007 ::

I have been taking CellCept for minimal change disease/nephrotic syndrome. I have experienced minimal side effects and have seen great improvement over the last year. Published: March 07, 2008 ::

I was prescribed CellCept for severe, progressive, ocular MG in early Oct. I have been on the drug 3 months but have developed severe taste perversion, ageusia, a horrible sick, mold/dead salmon taste in my mouth, nausea, abdominal pain, and diarrhea. If I eat a banana it tastes like I am eating the skin/peel of a bananna. The GI intolerance is going to make me stop taking the drug. I have no appetite and have lost weight. My ocular MG is better, but I am also taking high dose steroids. Rest is my best medicine. Published: December 28, 2007 ::

since my trnansplant, i've been on cellcept and prograf. i've had random, sometimes frequent diarrhea and cramping, usually in the morning. my dr said it was the cellcept and suggested immodium as needed and that eliminates the symptoms in minutes when i'm having a bad day. i have also realized on cellcept, it's best for me to avoid certain foods and my symptoms occur less frequently. Published: March 27, 2008 ::

I have Chronic Hep C and rheumatoid arthritis. Cellcept is the one drug both my doctors agree on. It seems to help the rheumatoid. Published: October 22, 2007 ::

I have had good luck with this drug. I was concerned when I found out that it can cause bad brain viruses. I tried to get off it and as I tried to wean myself off all of my MG syptoms started to come back and I didn't want to go to the depths of hell I was at before so I decided to take my chances. I feel like I am playing Russian Roulette but I don't feel like I have a choice. Published: September 22, 2008 ::

I was prescribed this medication along with Prednisone to treat an autoimune disease that began as a resh that eventually covered my body and developed into blistering on my torso, arms and especially my feet. A 17 day hospital stay and diagnosis from Mayo Clinic has put me on the road to recovery. I am very tired and fighting an infection/cold/cough that has lasted 3 weeks. I find that I need additional rest and being diabetic must make sure that all meds and meals are on time and on a regular schedule. Keeping my blood sugars in normal range has taken extra care. The swelling has been confined to my legs and ankles. Taking a water pill make additional potassium necessary and being anemic I have increased my diet to include more iron rich foods. Because this particular autoimune disease is rare, there is little information out there. Even the dermotologist/internist/wound clinic staff has had to do additional research. I may look into an on-line support group. Other info on Cellcept for this condition suggests that treatment can take 6-8 years and that it may go into remission. What a journey! Published: May 19, 2008 ::