I feel as though the joint pain and bladder pain is from this med Dr not certain yet still real new for me. Published: December 05, 2008 ::

I think everyone who has Chrons should try this drug. It is easy because it is shipped to your home, a nurse comes and gives it to you, and it really has worked like no other! It doesn't make you gain weight (like steroids) either! YAY! I agree with the posts that say it makes you sleepy the day after. It does the same to me. I also seem to get a cold, or coughing the next day. But like many, I wouldn't stop taking this medicine! Oh, I too, feel that the second shot stings more than the first!!...whether it be the thigh or tummy! Weird! I do have a question i was hoping someone could help me with? My doctor has had me on pain killers for the past 2 years with my severe chrons....although no surgeries, I was in TONS of pain. I was on fentynol and lots of opiates. Now, I am only taking 10mg Norco, 2 every 8 hours. Now that I'm on Cimzia, I feel that I can go with no pills. But I am afraid of the withdrawl symptoms i have gone through before. Does anyone have any advice for me?? I am thinking of asking to take Suboxone, but I'm not sure if that will make things worse! Or do you think that I should stay on my Norco? I am quite functional on them, but i do not work now, and since the new shots are working, it is time to get back to work! Thank you to anyone who posts on here to help me! Please feel free to email me at Elleswraps@Aol.com. THANKS~!!! Published: January 20, 2009 ::

This has been a huge improvement for me and extremely rapid. I cant wait to see more improvements. 5 of 8 active fistulas stopped within 1 week, swelling way down energy up.Nausea almost nonexsistant. I have decreased my pain meds to 1/4 of what I was taking(Fetanyl,Vicoden,diladud) The only "side effects" if they are really side effects are kinda wierd. I can not stay awake for nothing the next day, my face has broken out(acne not this ad since teen years) and I have developed a allergy to bandaids(non latex even) But there is NO WAY I would discontinue Cimzia because of these. I FINALLY see a light at the end of this horrible Crohn's tunnel and hope to resume my life within one yearif I keep improving as I am. P.S. for some reason the 2nd injection stings like CRAZY even though it is in a different site each time(Tummy then thigh or vice versa) Published: December 21, 2008 ::

This drug has done wonders for me. I have never needed pain killers like another reviewer on this site, but my diarrhea has improved significantly. My energy has improved and I am able to travel with my husband without as much concern of problems. The day after my shots, I have extreme fatigue. I am fortunate enough to be able to give in to that feeling, and I take it slow and rest the day of my injection and the following day as well. I have a question for the other users. I am not allowed to give myself the injections, I am required to have home health nurses come and give it to me. I was told the drug is not approved for self administration. Published: January 07, 2009 ::

I have only had my first two shots. I seem to have gotten severe joint pain. I am not sure if this will last or go away, but I am going to stick with it for awhile longer. Remicade seems to have given up on me. Published: April 13, 2009 ::

I have only taken the first dose of the medication but had some scary side effects. About four hours after injecting Cimzia I was awoken by severe dizziness, numbness of my tongue, tingling in my arms, hands, and legs, shortness of breath, swelling of my lips...I have never felt like this before. I had been on Enbrel for 5 years and I have not had any allergies to medication before. I have had a slight improvement in small joint swelling and pain as well as a decrease in the duration of my morning stiffness. After several years of waiting for a new drug I am disappointed. Good luck to everyone-hope it works for you! Published: July 27, 2009 ::

First of all, like another patient, Remicaide had given up on me too. I also read someone saying they now have allergies to bandaids. I actually developed this with Remicaide and was told that it was a hypersensitivity issue- that and the lack of response eventually caused me to quit using that med. I have been on Cimzia for 11 months now and have mixed reviews. It never lasts the four weeks that it is supposed to. For the first couple of weeks, I see great improvement then weeks 3 and 4 go downhill quickly. My doctor was going to try an intermediate dose but I cannot stay healthy long enough to do that. That is my biggest complaint- I am always sick- with something...- I had total knee replacement in 5/08 and now think I have a bone infection- If so, will have to have the whole knee taken out, bones scraped, and a new knee put in. I am not sure if the short lived improvement is worth the side effects. Also, I saw many posts about the use of Narcotics- I was there (Fentanyl, Percocet, Oxycontin) and all I can tell you is that they almost ruined my life. I understand the pain and am not trying to judge but if you have any alternatives, try to get off these. Since I have been dealing with the pain so long now- 14 years- I usually just cope. At most, I take 2 Vicodins- They help but do not get rid of it totally. All the others eventually made me non functional. It always seems to be a no-no win situation with Crohn's. I wish someone would come up with a cure instead of all these funky meds... Published: July 14, 2009 ::