Copaxone User Reviews

Copaxone User Reviews

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Here is a collection of user reviews for the medication Copaxone sorted by most helpful. Patient Discussions FAQs

The following Patient Discussions have not been medically reviewed. See additional information.


Comment from: None, 45-54 Female on Treatment for 5-10 years (Patient)

I don't like the way the injection sites become, sore, red or bruised looking. They also become "dent" looking spots after awhile, they don't go away completely. However, I love the results of the treatment. Published: November 01, 2007 ::

Comment from: Lorelei, 35-44 Female on Treatment for 5-10 years (Patient)

I have been using Copaxone for 7 years now. It is a miraculous drug for me. I have only had one exacerbation since starting. Prior to Copaxone, I tried Avonex. Was bed-ridden for 5 days with terrible flu-like side effects. Never tried it again. My only complaint with Copaxone is the lumps it leaves at the injection site. Also, have problems with what I call "pot- holes" or "divits" that it has left in my skin over the years. After discussing with my Neurologist and the Pharmeceutical co., I have changed to ever-other day injections. This was due to running out of sites as the lumps take too long to go away. I am not recommending this dosing schedule to everyone, but it may be worth discussing with your Doctor. God Bless you all. Positive attitude is EVERYTHING with this disease! Thank you. Published: February 29, 2008 ::

Comment from: the cat lady, 35-44 Female on Treatment for 2-5 years (Patient)

I was diagnosed September 1997. It took me years to finally accept the idea of shots. I started with Avonex. I could not continue with this treatment due to the side effects. I went without meds for a few years. Then I was put on Copaxone for awhile but the skin site reactions were too hard to deal with. Then I was switched to Rebif. I do not respond well to interferon. When a fellow coworker pointed out the fact I could not remember anything it was time for a check up. I was once again put on Copaxone. That was over two years ago. Once I started treatment again my recall improved greatly. My skin site reactions are less now that my husband gives me the shot. When I was doing the injecting I was pushing on the skin surface too much and that was what was causing those huge red reaction sites that burned for some time. I just wish that traveling with Copaxone was easier. Having a packed cooler, getting motel rooms with mini fridges, having to carry a sharps container, keeping a suitable ice pack cold enough to use after the shot was sort of difficult when we were traveling a long distance. But then again having my memory back, being able to walk without tripping, living life to its fullest doing the above is well worth it. Published: July 28, 2008 ::

Comment from: Female (Patient)

I have used interferons and they are far worse (for me) than copaxone. The important thing is that we all stay on some sort of therapy. Published: October 15, 2007 ::

Comment from: PoeticDolor, 35-44 Male on Treatment for 1-2 years (Patient)

I have been on Copaxone for over a year now and regardless of the difficulties I've experienced during injections, this drug simply works great! The bad reactions I have experienced injecting this drug are to be honest, substantially longer than claimed by the drug's maker. 45 minutes of extreme heat and hard muscle spasms followed by 45 minutes of uncontrollable shivering. And while these worse-case reactions are thankfully uncommon events, they ultimately should not become a major concern. After all, the purpose of injecting for me has been NO FLARE-UPS since I've started this drug! Just remember to always rotate your injections loyally and if you do experience difficulty with unacceptably slow injections (which will happen) simply shift to injecting twice on the stomach region - one left and one right of the navel and if needbe, high and low on each of your legs. After a few weeks, you can return to injecting in the sites which were causing you trouble. This fluid shifting may seem troublesome but if you maintain a focused and adaptable injection routine, the benefits can be outstanding! Thanks Teva Neuroscience for at the very least, sucessfully controlling my Multiple Sclerosis! Published: February 21, 2008 ::

Comment from: digger8914, 35-44 Female on Treatment for 6 months - 1 year (Patient)

I was diagnosed Aug 07 began copaxone Sep 07. I am so lucky to have a best friend give me my shots every day and that makes all the difference. At first had such a hard time especially with my arms but now... The reactions are annoying,the lumps last the full week.With the auto inject we found if you adjust the depth for each sight because the fat is different in each area,the bruises will not be as bad. Within a few weeks I felt my cognitive thought clearing and my strength get better. My balance and muscle fatigue are getting worse but I just had my first follow up MRI and no new lesions and only one active sight so all in all things are great and I will stay on the copaxone. My drug provider just sent me a trial package of copaxone with thinner needles ( it does make a difference)so maybe this will be available to all of us soon. Ask your provider. Published: May 29, 2008 ::


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