DDAVP User Reviews

DDAVP - User Reviews

DDAVP User Reviews

Now you can gain knowledge and insight about a drug treatment with Patient Discussions.

Here is a collection of user reviews for the medication DDAVP sorted by most helpful. Patient Discussions FAQs


Comment from: alyssaster, 25-34 on Treatment for 10+ years (Patient) Published: January 14

I've been taking DDAVP since I was 4yrs old. I am 25 now and it has effectively controlled my excessive water intake and frequent urination. However, I had not had any side effects until recently. I was hospitalized a few months ago for hyponatremia‚Ä”or low sodium‚Ä”which is a rare side effect of the drug. It was a condition that built up over the 21 years I had been on this drug, but was never noted. If you've been on this drug for a prolonged period of time, be very aware of side effects. A simple headache could be a result of low sodium, or something more serious! On the plus side, I'm now on a bacon diet to keep my sodium levels up :)

Related Reading: hyponatremia | headache

Comment from: Sam, 55-64 on Treatment for 1-2 years (Patient) Published: September 28

I was diagnosed with DI a year ago and started with the nasal spray. I wasn't convinced that the spray always worked so switched to tablets. After several changes in the dosage I think we've got it right now. I felt like I'd got my life back. Now I am wondering if it is changing my mood as I am feeling depressed.

Comment from: bbwhited, 45-54 Female on Treatment for 10+ years (Patient) Published: April 13

if you take this medication for diabetes insipidus, do not allow the doctor to limit your use, make sure you have atleast a one year supply on hand at pharmacy at all times, so that you never run out of refills, i been on this medication since 1983 after a tumor removal thru a craniotomy, i am dependent upon this medication, one time i went four days without this medicaiton due to a doctor wanting to see me in the office for a yearly visit, and had a salt imbalance due to water flushing of electrolytes and so on, had to be hospitalized for 6 days to recuperate

Related Reading: tumor

Comment from: matthysen p @ yahoo.com, 45-54 Female on Treatment for 10+ years (Patient) Published: October 14

my situation is that my sickness is called panipapit with hypochlorisn hyper thyriodism in effect i already had 3 brain tumors and it means that my pituary gland was removed in order to save my life i use ddavp each and every day to help assisting my urine flow

Comment from: blessed, 7-12 Female on Treatment for 6 months - 1 year Published: September 24

My son(12)(took 2 pills) & daughter(10)(took 1 pill)was on med. for about a year & it was very successful with no side effects. They no longer have to take it.I just started my 8 yr. old son(takes 1 pill) on it with great success

Comment from: Endogirl78, 25-34 on Treatment for 1-2 years (Patient) Published: August 01

DI was diagnosed not long after my brain tumour. I was having to get up during the night every 2 hrs at least and was drinking somewhere around 10-12 litres of fluid a day. Had to be icy cold fluids as well. Taking the mess has been a great relief even though the amount I take still needs adjusting. I currently take 3 a day and although not perfect it is a vast improvement. Had brain surgery 2 weeks ago so that's caused some problems and thrown things out of whack (not enough fluids, nil by mouth) but generally I'm very happy with it.


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