I had a large pituitary adenoma and Dostinex has lowered the prolactin level causing the tumor to totally shrink. Published: October 04, 2007 ::

In 1995, to my dismay I was diagnosed with a prolactin producing brain tumor. What a Terrible shock the news was to me. My porlactin levels were in the 1200 to 1300 range, and to make matters worse I am a male and my levels should have been from 0 to 26. My doc started me on Parlodel 30 mg PO daily. I became VERY sick and extremely depressed, both of which are side effects to Parlodel. I changed endocrinologists and my new doc put me on Dostinex 0.5 mg PO three times a week. Just last month my porlactin level was 14. This drug has saved my life. My tumor is managed by taking this medication. I assume I will take Dostinex for my entire life or until the medical field comes up with a better way to manage my condition. The downside is the cost of the medication, even in generic form. I have held several different jobs and insurance can be tricky at best. But well worth any and all hassle I have had to put up with. In my best estimation this drug is a MIRACLE!! I am an RN and try to stay abrest to any new treatments available, but as of late I have had NO surgery to correct the tumor due to the size and location. Wishing you all the BEST!! Male RN in Wichita, KS Published: February 13, 2008 ::

I've been trying to get pregant for 4 yrs. Then found out my prolactin was 90, also have a pit.tumor. Within 3 mths my prolactin is now 22! Very effective. Ovulated the first time on the 2nd mth. This is my 4th mth on the treatment and I look forward to my next MRI test. First 3 wks I was super tired and dizzy but it went away once my body adjusted. My doc told me this is the best drug for high prolactin at this time and other drugs have stronger side effects. Published: September 30, 2008 ::

For the overproduction of prolactin in my body this drug was amazing and after a couple of months my levels were practically normal. However, it caused my heartrate to speed up randomly and now I'm at the point where the cure is worse than the ailment, and before this, I was pretty healthy without any medical allergies or anything. Please be careful taking this. Published: December 04, 2007 ::

I was diagnosed with a pituitary tumor when I was 15 years old. Can you imagine what my parents thought when I was lactating at 15? My GYN prescribed Parlodel. I tried it for 2 years and it made me horribly ill the entire time, and it never lowered my prolactin level. Finally, I was referred to an endocrinologist. He put me on Dostinex. It is well worth the price. For a couple years I had no insurance and could not afford the medicine. After I got insurance again and began the dostinex again I could tell an amazing difference. When I was first diagnosed at 15 I had never had a period (a secret I managed to keep from my mother). I was told at that time that I would never have children. I put the hope out of my head then and decided I never wanted them since I couldn't have them. When I was 22, to my amazement, I became pregnant. My husband of course took all the credit for "curing" me. We now have a 4 year old son. After I had my soon, my tumor did get worse but I am still taking my Dostinex and my prolactin levels are normal, they used to be 1,300-1,400. Dostinex is they best thing that has ever happened to me. For all the women who are told you can't have children because of this, keep believing and keep trying! If it happened to me it can happen to you!! Good Luck!! Published: April 06, 2009 ::

I was having milk production. Being a male, that was very wrong. They found that I had a pituitary tumor about 4 years ago. I was placed on the medication because I didn't want to do the operation that the doctor said I should have done. I can't say it was just the medication, but the tumor is now gone. It has completely vanished. My prolactin levels remain between 5 - 7 which for a male is just fine. It did make be a bit sick when I first started using it, but it was so worth it now. Published: April 16, 2009 ::

I was diagnosed with prolactinoma around 1996. I have been taking dostinex for about 5 years now and my prolactin level went from 75 to 20. I did have some side effects when I first started taking it, nothing major. Now I have no side effects. My tumor has not grown at all. I do still lactate, but not as bad as before the dostinex. Published: April 07, 2009 ::