Gleevec User Reviews

Gleevec User Reviews

Now you can gain knowledge and insight about a drug treatment with Patient Discussions.

Here is a collection of user reviews for the medication Gleevec sorted by most helpful. Patient Discussions FAQs

The following Patient Discussions have not been medically reviewed. See additional information.


Comment from: John V, 55-64 Male on Treatment for 1-2 years (Patient)

I can't say enough about this medication. My white count was over 200,000 when I was first diagnosed with CML. Within 3 weeks of taking the medication my white count dropped 90% with the only side effect being diarrhea. I am down to two tablets per day, the diarrhea is occasional and treated well with Immodium and my PH chromosome count is around 1%. If ever there was a miracle drug, this is it. Published: March 31, 2008 ::

Comment from: Momcat, 45-54 Female on Treatment for 1-2 years (Patient)

I have been on Gleevec for almost 2 years now, and am in complete remission. It took a bit longer for me to achieve this, but once I did I have stayed there. Few side effects--nausea if I take it without food, diarrhea, some aching bones, but generally I work full time, take care of my family and raise my boys. Life is Sweet with this drug--I can't thank Dr Druker enough for inventing it. Published: July 07, 2008 ::

Comment from: 45-54 Male on Treatment for 5-10 years (Patient)

I've been on Gleevec since Jan, 2002. Been in molecular remission for a few years now. Most of the side effects come and go although I have a HUGE issue with muscle cramps/spams in my extremeties. There are times I can't even sign my name because my fingers cramp so much. Consdiering the alternative, I'll live with the cramping! Published: March 13, 2008 ::

Comment from: wills, 55-64 Female on Treatment for 2-5 years (Patient)

I have been treated for going on 4 years. I am in remission and doing well. I sort of look like a raccoon sometimes because of side effects effecting my eyes. Pain, watering etc. Still some vomiting from time to time but, all in all I am doing great, am able to take hikes, walk the dog and enjoy family and friends. I feel lucky that I have this medication and wonderful medical support. Published: February 13, 2008 ::

Comment from: A Howe, 45-54 Female on Treatment for 6 months - 1 year (Patient)

At first there are somer side effects like, eye swelling, rashes on legs,arms, and sometime stomach, and edema on the ankles, these symptoms will taper off. Your white blood count will eventually get very low and you might get sick with a cold or worsre so you may have to stay away from the general public so you don't catch any thing worse. This may be a major concern. Published: September 25, 2007 ::

Comment from: Cathy, Female on Treatment for 5-10 years (Patient)

Since I have been taking this medication my last two bone marrow tests have come back negative. The tests are not showing any trace of the CML. Published: June 03, 2008 ::

Comment from: 45-54 Male on Treatment for 5-10 years (Patient)

Been taking for 6 years and has kept it in check. Very few side effects Published: November 02, 2007 ::

Comment from: shawn, 35-44 Male on Treatment for 1-2 years (Patient)

after a year and a half of taking this medicine @ 400 mg per day I am now in remission.this medicine works very well but is also very expensive.that is the only bad thing about it.i have to take it for at least 2 more years so I am hoping the price will come down.this is too expensive $3500.00 for 30 tablets.my kids have missed out on alot because all my money goes to the medicine but I am still alive thank you jesus Published: June 07, 2008 ::

Comment from: psavel, 65-74 Female on Treatment for 2-5 years (Patient)

When I first started using it I was sick and threw up a lot.My eyes are red and always look funny. Some swelling and a lot of diarhea.Lots of aches and pains and low energy level. The drug is working for me though and I am in remission now and doing much better. Published: October 24, 2007 ::

Comment from: foxy, 45-54 Female on Treatment for 10+ years (Patient)

gleevec works really well at keeping my white count incontroll, but I have 9 side effects, some I have to take othere medications for, some i just suffer through. Published: February 19, 2008 ::

Comment from: Davidc, 45-54 Male on Treatment for 1-2 years (Patient)

I had a large GIST near my colon, a very rare tumor; I was treated with 800 mg Gleevec for 5 months, and it worked to weaken the tumor cells and reduce their growth. It was removed intact in December 2007. I had minor side effects, diarreah, fatigue, gastro-intestinal discomfort. After surgery, I am taking 400 mg. pills for a year to prevent recurrence of tumor. Gleevec has worked well for me up to now. I recommend it for gastro intestinal stromal tumors. Published: May 26, 2008 ::


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