Herceptin User Reviews

Herceptin - User Reviews

Herceptin User Reviews

Now you can gain knowledge and insight about a drug treatment with Patient Discussions.

Here is a collection of user reviews for the medication Herceptin sorted by most helpful. Patient Discussions FAQs


Comment from: 35-44 on Treatment for 6 months - 1 year (Patient) Published: January 03

Ever since I've been on herceptin just by itself (without taxotere and carboplatin) I've been in constant joint pain; shoulders, elbows, fingers, hips and feet nothing helps! I feel like a little old lady with arthritis but I'm only 43. Does anyone else feel this way?

Related Reading: herceptin | taxotere | arthritis

Comment from: crantode, 55-64 on Treatment for 5-10 years (Patient) Published: May 19

I have been on Herceptin for the past 6 years after having breast cancer 4 times. This drug works very well. So if your doctor has you on this drug stay with it as long as you can. If your heart can take it the worst thing I can say is sometimes it is a drag to have to go for treatment every three week, and your nails become brittle. Other than that it is a wnderful drug for those of us with HER2 breast cancer. I hope this is helpful for you.

Related Reading: breast | cancer | breast cancer

Comment from: mad but alive, 55-64 on Treatment for 6 months - 1 year (Patient) Published: October 27

oct 2006 i had breast cancer. after four months of chemo i started herceptin in march 2007 with my last 2 doses of chemo. by May, i started feeling worst than i did with chemo.i had all the pain,fatigue,depression, and i did a lot of crying.i also had breathing problems. my doctor told me this was normal and it probably was a rection from chemo. by june my breathing became painful and that made my chest hurt. FINALLY in sept 2007 my doctor sent me to a cardio doctor. i am now jobless and fighting heart disease and heart failure. don't let this happen to you. i did 36 weeks of herceptin. breast cancer was a breeze compared to this. make your doctor listen, i was not given much info on heceptin and my doctor told me it was safe and chances of heart problems were not likely to happen to me. i am a breast cancer survivor,and i am alive thanks to my determination.

Related Reading: fatigue | depression | heart disease

Comment from: Sherrie W., 55-64 on Treatment for 1-2 years (Patient) Published: August 18

I had a lumpectomy, chemo, Herceptin and 32 radiation treatments for early stage breast cancer. The doc stopped my Herceptin treatments several times during a one-year period of time due to decreased heart function. My ejection fraction rate went from 68% with no heart problems whatsoever to 35% a year after stopping Herceptin. My heart has not regenerated as my onocologist told me it would. I just had an echocardiogram and it shows I now have mitral regurgitation (which can only be fixed with open heart surgery), ischemic heart disease any several other major problems. I went from being totally healthy and fit to being fatigued and in constant joint pain. I am so angry about Herceptin and its side effects. My oncologist said my heart would regenerate after stopping Herceptin. After 1 year and 5 months of stopping Herceptin my echo shows heart disease and major heart problems I never had and never expected. I am now faced with the prospect of open heart surgery. I am only 58 and extremely upset that this has happened. I wish I had never taken Herceptin. Be very careful! God be with all of you taking this drug.

Comment from: Marci, 45-54 on Treatment for 1-2 years (Patient) Published: October 20

I received herceptin during my chemo treatment and now herceptin only for 1 year ending 12/2008. I too had real bad muscle aches after the first couple of treatment and fatigue. But now I still have ongoing mucle aches it is not as bad as the first couple of Herceptin treatments. My heart scans have been good and not sure is the fatigue and muscle aches and chemo brain are from chemo, radiation and herceptin or all off the above from this last year of treatments. I want to know if anyone has continued Herceptin after the one year? I feel like it is working and really don't want to stop and risk a reaccurance. I feel like the herceptin is keeping the breast cancer away. My onco doc said the studies on Hercep do not indicate any longer term use gives better outcomes...Any one have any experience on longer use of Herceptin? Please respond. I can't find any information any where else regarding longer use of herceptin.

Comment from: Pearl, 55-64 on Treatment for 1-2 years (Patient) Published: March 05

Diagnosed 2/8/10, stage 1V, metastatic breast cancer, ER, PR Neg. HER2 positive. Began chemo & Herceptin Infusions 3/1/10. had 8 chemo treatments every 3 weeks and Herceptin every 2nd and 3rd week for 6 months & now have Herceptin every 3 weeks. Scanned after every 2 cycles and began to show shrinkage in the first scan. I had cancer in my right breast, lymph nodes, liver and bone. 2.8 cm in breast and 3.1 in my liver. No sign of either after the 6th chemo treatment but went ahead and did 2 more cycles to make sure. 9/8/10 = lumpectomy on right breast and on 3/1/11 began my 2nd year with Herceptin and am told that I will need to continue with Herceptin indefinitely. Combined with the chemo gave great results with the tumors in the breast & liver, but not without severe side effects. EXXXXXXtreme fatigue, severe muscle & joint pain continues to this day, very brittle and thin fingernails. Of course I lost my hair everywhere and the only place it did not return is in my nose. The hair on top of my head is thick, curly and gray with darker roots. No radiation so far. Continuing with Herceptin infusions indefinitely every 3 weeks.

Related Reading: liver


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