I've had Juvenile Rheumatoid arthritis since I was 15, i've been on Enbrel and I was sore all the time so my doctor put me on Kineret and the results are amazing. I've been using it for about 6 years and I never have flare ups or sore joints. The only problem that I have is it does not help my fatigue, I have very little energy. But My joints are almost back to normal. Doing an injection everyday is an inconvenience but nothing else has controlled my pain as well, I don't even have to take any other medication with it. Published: September 03, 2008 ::

I was diagnosed w JRA@age 7 w Stills Disease tendencies.I started this medication and it has been a blessing.I've been on multiple regimens including Enbrel, Remicade,and Orencia.None of them has worked as well for me than Kineret.I just hate the daily shot, not only bcs of the inconvenience, but also bcs the medication is thick, therefore painful when its injected.I cant do it for myself,I have to get someone else to give it to me bcs its painful.If you've ever had Gold injections, than that would be about the same level of pain, but not as bad as a cortisone shot. Published: April 09, 2008 ::

I was diagnosed with JRA around age 7 with Stills Disease and lupus (SLE) tendencies. So, I am very similar to another poster here. I've had rash and fevers since I was born, so I currently consider myself a CAPS (Cryopyrin Associated Periodic Syndromes) Kineret works extrememly well for me and gave me normal labs. I've tried a number of drugs including Imuran, Cellcept, Enbrel, Methotrexate, etc. The Kineret injections can be painful and gives me large bumps at the point of injection. I use Triamcinolone 0.1% ointment to take away all the discomfort. I also make sure to wait a full hour for the injection to fully reach room temperature. I would be interested in emailing with similar folks. pinecone@gmail.com Published: February 04, 2009 ::

I had a very severe reaction to this medicine. My whole body hurt. Afterwards I developed 3 blood clots in my lungs. I reported this to the makers of Kineret, but they told me I was the only person to experience this problem. My Doctor took me off from it immediately and the physical pain went away, but I still have trouble with my blood now. Published: October 05, 2007 ::

I have used this medicine a little over a year and it has changed my life completely. I suffer from FCAS which is very painful and debilitating. My insurance company reports that it will probably not pay for this drug after December. I do not know what I will do. I can not live without it. Published: June 19, 2009 ::

I was DX about 6 years ago with adult onset Stills disease ( a form of RA). Was on Enbrel for the first few years. Enbrel keep me functional and able to preform at my job but there was still significant pain & I was very limited in my abilities. I've been on Keneret for almost the last 3 years & could not be happier. I have very little limitations an more. I've gone mountaineering, backpacking, and many other demanding activities. The daily injections can be a pain but it is well worth the freedom it gives me. Published: May 28, 2009 ::