I've been on Orencia for three months now (four infusions). My doctor feels I should give it six months to see whether it is going to help, but my RA symptoms are getting increasinly worse. I'm trying to find out whether anyone else has actually experienced a worsening of symptoms due to Orencia, to help me decide whether to give this more time. Published: October 16, 2007 ::

I was 36 years old when I found out that I have RA. I'm glad I was put on this study. I was on a drug study for this drug. And it has help me very much. But now my study is done and I cant afford to do it anymore. So Im trying to find help so I can keep getting my infusions. It is a wonderful drug because I don't hurt nomore. I hope it helps others. Published: October 17, 2007 ::

I was diagnosed with RA at the age of 31. I've been on remicade,enbrel,humira,& all the pills. This Orencia so far has kept me from having those nightmare flare ups that used to make me contemplate having my extremities simply amputated. That's how bad it got when the other meds stopped working. I was at the end of my rope. No one really understands the severe pain I was having. Orencia, so far has brought me back to the living, but so did all the other meds for periods of time. I pray that this Orencia will continue to stay effective. Its great to walk among the living again!!!! Published: May 11, 2008 ::

I have been on the drug for 6 months now and I feel great!!! My hands hardly hurt at all anymore (I'm typing better than I ever have). No having to stick myself with a needle - I let my doctors office do that. It did take about 2 months to start feeling the improvements but it was worth it. My energy level is way up too. Published: April 17, 2008 ::

I get sores in my mouth the day after treatment that last for weeks.I am unable to eat and it is painfull. Published: November 20, 2007 ::

I have had RA for over 30 years. I have used just about every drug available. I have been on Orencia for about 9 months. I take it in addition to Arava and Mobic. I am very happy with the results. I have not had a flare for several months! Published: March 10, 2008 ::

I've been using this medication since it was first released. I also take Mobic and methotraxate injections once a week (easier than pills/less side effects). It has helped me get back to my hobbies and a more normal life. Published: December 31, 2007 ::

I have tried Humira and Remicade and had to stop due to bad reactions. So far Orencia has been terrific, just hope my body doesn't reject it later too. I have energy and little to no joint pain. I have been receiving the IV's for less than 1 year. Published: December 03, 2007 ::

Pain is not controlled. Program is underdeveloped. Using the in home care infusion program and they don't show up, or call. The medicine is having so far about a 68% success rate with all joints but wrists and elbows. Wouldn't advise starting the program until they are able to accomodate the patients they currently have. Published: December 27, 2007 ::

I've been on Orencia 7 months and notice that my swollen joints have subsided.... but after the first treatment, I got sores in my mouth that went away but then my face broke out with a rash that comes and goes, but never really goes away... it looks like I have a bad diaper rash on my face around my mouth, nose, and it is now affecting my eyes..people do look strange at me now. Doctor says I should keep trying for another 3 months... Anyone else have the same reactions? I've had R/A for 22 years.... Published: February 02, 2008 ::