Revlimid User Reviews

Revlimid - User Reviews

Revlimid User Reviews

Now you can gain knowledge and insight about a drug treatment with Patient Discussions.

Here is a collection of user reviews for the medication Revlimid sorted by most helpful. Patient Discussions FAQs


Comment from: 45-54 on Treatment for 6 months - 1 year Published: May 12

My 74yr old Mom was diagnosed 08/16/09.Large tumors in both hips,small tumors throughout spine and back. Bonemarrow 45% cancer cells. Mom also has Diabetes, HBP and Interstitual Cystitus. 09/09 She began treatment: 18 Rounds of Radiation on hips, Revlimed 25mg, 21days on/7 days off, Decadron 40mg 4dayson/4 days off. Potassium and Calcium daily; Once a month Zometa & Procrit. Her pain was extreme due to the size of the tumors.The only significant side effects were from Decadron: Glucose levels averaged between 200-515. Agitation/nervous,increased thirst and urination which lowered potassium level causing severe nauseau. 11/09 We were Blessed w/the news of ZERO Cancer cells in Bonemarrow. 01/10 REMISSION!!! Mom's Oncologist said,"He couldn't believe it had only been 4 mo's ago and that he had never seen anything like this". His words were,"it's a MIRACLE!" Revlimed was lowered to 15mg. 04/10 PetScan Results: No signs of new Cancer! However, scan revealed fractures in R Ribs and L Hip. We were shocked because she hadn't fallen but, were so thankful. Mom still has pain in back and hips but,it's nothing close to what it once was,bones are very fragile from the Myeloma. However,we truly believe God is in control and is guiding her Oncologist towards her healing.

Related Reading: cancer | Diabetes | Decadron

Comment from: Jo Ann, 75 or over on Treatment for 1-6 months Published: November 26

My Dad started taking Revlimid three months ago, 21 days on, 7 days off. He took it for three months. It did not work for him at all. In fact we believe it caused him to have a mini stroke which then made him bedridden. My dad passed away on 1/22/09.

Related Reading: stroke

Comment from: gja2414@aol.com, 65-74 on Treatment for 1-6 months Published: July 25

IT HAS BEEN SATISFACTORY, SHOWING IMPROVEMENT WITH ILLNESS. BLOOD WORK IMPROVING AND PROTEIN LEVELS GOING DOWN. 70 YEAR OLD MALE DIAGNOSED MAY 2009, STARTED WITH RADATION AND THEN VELCADE. 15 MG REVALIMID 21DAYS 7DAYS OFF. SOME SWELLING OF FEET, BUT MUCH IMPROVED SINCE STARTING REVALIMID. HAVE BEEN TAKING FOR APPROXIMATELY 5 MOS,

Related Reading: VELCADE

Comment from: Peaches, 55-64 on Treatment for less than 1 month Published: September 13

My husband was on Thalomid. Went into remission and numbers were good until last month. Dr. put him on Revlimid and he is so darn sick. Just two days and he is exhausted and can't sleep and rash and itching all over. I'm trying to talk him into going back to the Thalomid.

Related Reading: Thalomid | rash | itching

Comment from: 55-64 Female on Treatment for 1-2 years (Patient) Published: March 14

My counts have gone way down but other than being tired some times, the drug seems to have worked. I am 7 years out from two stem cell transplants.

Comment from: Elvia, 45-54 on Treatment for 6 months - 1 year (Patient) Published: November 07

I have MDS. I have been with the medication for the past 11 motnhs and my bleedings have stop. I have been transfussion free all that time.

Comment from: rachelt16, 25-34 on Treatment for 1-6 months Published: January 27

My father, diagnosed w/ myeloma in Oct 2008 and the cancer mestatsized after radiation and he's been on the drug since 09/09 (21 days on 7 off). The doctor says that his blood count is WNL however it seems as if the side effects of the cocktail (decadron and revlimid) have taken effect. His legs, ankles, feet and face are severly swollen and he seems to be aggitated all the time. It's difficult to determine if the meds are causing him fatigue (he can fall asleep anywhere, anytime). Additionally, he has type2 diabetes and the cocktail has been known to increase blood sugar and effect kidney function although his proteins have been only slightly elevated. His skin is VERY dry so you would think he's dehydrated but because of the effects on the kidneys, he's constantly urinating. It is understood that this is not a cure all to the disease and some days are going to be worse than others but I wonder if he would have benefitted from infusions rather than the oral treatment. Yet, I remain hopeful that this will go into remission and the happy, on-the-go father I know and love will be up and about soon. For those of you who have lost a loved one, my heart goes out to you. Thank you for sharing your stories. -Rachel

Related Reading: fatigue


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