Sustiva User Reviews

Sustiva User Reviews

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Here is a collection of user reviews for the medication Sustiva sorted by most helpful. Patient Discussions FAQs

The following Patient Discussions have not been medically reviewed. See additional information.


    Comment from: jeffrey, Female (Caregiver)

    good no problems Published: September 30, 2007 ::

    Comment from: 35-44 Male on Treatment for 6 months - 1 year (Patient)

    Undoubtedly this is very effective medicine for most peopled. Some, such as myself suffer intolerable adverse effects. Initially I had hallucinations and felt very disorientated to the degree that it was dangerous to prepare food or drive, and it was impossible to sleep. This went away after a few days but the feeling of being detached from my surroundings and the visual disturbance persisted. I changed the timing of the dose to the morning but this meant that 3 or 4 hours after the dose were spent in a state where it was difficult to think clearly and explain to doctors and other support workers what I was going through. I felt like I was wrapped in cotton wool, but very anxious and guilty for no rational reason. Sleeping was difficult, and got worse to the point where 2 hours a night was the best I could hope for. The worse thing was that it was difficult to commicate what I was going through, in the end I just refused to take the medication any more. Published: January 05, 2008 ::

    Comment from: jimsit, 65-74 Male on Treatment for 2-5 years (Patient)

    I would say 100% satisfaction. However, when I went on the drug approximately 2 years ago I gradually became more pale and my blood vessels became smaller and harder to find by phlebotomists. This was so noticeable to the drawer that they would almost always mention it and have to use a smaller than normal needle. I don't know that Sustiva caused this condition per se. I do know that it began with my first draw after starting Sustiva. I may choose to stay with the drug, however, as it works beautifully with no side effects except this strange disappearance of my veins and paleness of my skin. Published: February 24, 2009 ::

    Comment from: RicknDC, 55-64 Male on Treatment for 5-10 years (Patient)

    While I experienced dizziness when I first took Sustiva (along with Ziagen and Epivir); this disappeared after about 2 weeks. No other side effects and in conjucntion with Ziagen/Epivir initially and now with Epzicom my viral load has remained undetectable and my CD4 count and CD4/CD8 ratio have been high for over 7 years now. The only complaint is the ever-increasing price. Published: April 17, 2008 ::

    Comment from: sad, 35-44 Female on Treatment for 1-2 years (Patient)

    it is working for me, except for the weight gain. The biggest issue is the amount it costs me to refill every month, i struggle to get it some months. I was hoping to out if there is help with copays for my meds. Published: April 14, 2008 ::

    Comment from: Steve, 35-44 Male on Treatment for 5-10 years (Patient)

    I have been on Sustiva for six years. It has been very effective, however, the side effects suck. I have morning nausea on a daily basis, along with trouble sleeping. I won't go off of it, however, because it is working. Published: February 20, 2008 ::

    Comment from: leetown, 55-64 Male on Treatment for 5-10 years (Patient)

    i have been on Sustiva for a bit over 5 yeas, in combination with Viread and Ziagen. other than some strange dreams, i have had little or no side effects from this medication and i have been undetectible for nearly 5 years now. Published: February 03, 2008 ::

    Comment from: 55-64 Male on Treatment for 5-10 years (Patient)

    I have been on sustiva for 5 years now and aside from sometime odd dreams(though not nightmares} it has been wonderful in keeping my aids under control. I never miss a dose, that could be a factor. Published: November 20, 2007 ::

    Comment from: 45-54 Male on Treatment for 10+ years (Patient)

    I have vivid dreams, but I manage. I've taken this medicine for 11 years. Published: July 15, 2009 ::

    Comment from: 35-44 Male on Treatment for 1-2 years (Patient)

    I experienced a lot of nausea, fatigue, night sweats & nightmares with this drug. It works well but I wasn't able to live with the side effects. I switched to something else and feel much better. Published: January 28, 2008 ::


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