Sustiva User Reviews

Sustiva - User Reviews

Sustiva User Reviews

Now you can gain knowledge and insight about a drug treatment with Patient Discussions.

Here is a collection of user reviews for the medication Sustiva sorted by most helpful. Patient Discussions FAQs


Comment from: 35-44 Female on Treatment for 6 months - 1 year (Patient) Published: January 05

Undoubtedly this is very effective medicine for most peopled. Some, such as myself suffer intolerable adverse effects. Initially I had hallucinations and felt very disorientated to the degree that it was dangerous to prepare food or drive, and it was impossible to sleep. This went away after a few days but the feeling of being detached from my surroundings and the visual disturbance persisted. I changed the timing of the dose to the morning but this meant that 3 or 4 hours after the dose were spent in a state where it was difficult to think clearly and explain to doctors and other support workers what I was going through. I felt like I was wrapped in cotton wool, but very anxious and guilty for no rational reason. Sleeping was difficult, and got worse to the point where 2 hours a night was the best I could hope for. The worse thing was that it was difficult to commicate what I was going through, in the end I just refused to take the medication any more.

Related Reading: sleep

Comment from: jeffrey, Published: September 30

good no problems

Comment from: john, 45-54 Female on Treatment for 2-5 years (Patient) Published: June 25

I've used this med along with Epzicom for almost 5yrs. At first I took my med's in the morning, it left me somewhat out of it but it was effective. After about 6 month's I begin taking my med's at night and that help a lot, still have some vivid dream's but I can handle that because I'm staying healthy.

Related Reading: Epzicom

Comment from: 45-54 Female on Treatment for 10+ years (Patient) Published: July 15

I have vivid dreams, but I manage. I've taken this medicine for 11 years.

Comment from: jimsit, 65-74 Female on Treatment for 2-5 years (Patient) Published: February 24

I would say 100% satisfaction. However, when I went on the drug approximately 2 years ago I gradually became more pale and my blood vessels became smaller and harder to find by phlebotomists. This was so noticeable to the drawer that they would almost always mention it and have to use a smaller than normal needle. I don't know that Sustiva caused this condition per se. I do know that it began with my first draw after starting Sustiva. I may choose to stay with the drug, however, as it works beautifully with no side effects except this strange disappearance of my veins and paleness of my skin.

Related Reading: Sustiva

Comment from: RicknDC, 55-64 Female on Treatment for 5-10 years (Patient) Published: April 17

While I experienced dizziness when I first took Sustiva (along with Ziagen and Epivir); this disappeared after about 2 weeks. No other side effects and in conjucntion with Ziagen/Epivir initially and now with Epzicom my viral load has remained undetectable and my CD4 count and CD4/CD8 ratio have been high for over 7 years now. The only complaint is the ever-increasing price.

Related Reading: dizziness | Ziagen | Epivir

Comment from: sad, 35-44 on Treatment for 1-2 years (Patient) Published: April 14

it is working for me, except for the weight gain. The biggest issue is the amount it costs me to refill every month, i struggle to get it some months. I was hoping to out if there is help with copays for my meds.

Comment from: Steve, 35-44 Female on Treatment for 5-10 years (Patient) Published: February 20

I have been on Sustiva for six years. It has been very effective, however, the side effects suck. I have morning nausea on a daily basis, along with trouble sleeping. I won't go off of it, however, because it is working.

Comment from: leetown, 55-64 Female on Treatment for 5-10 years (Patient) Published: February 03

i have been on Sustiva for a bit over 5 yeas, in combination with Viread and Ziagen. other than some strange dreams, i have had little or no side effects from this medication and i have been undetectible for nearly 5 years now.

Related Reading: Viread


Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on RxList. The opinions expressed in the comments section are of the author and the author alone. RxList does not endorse any specific product, service or treatment.

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