I Hve taken this 18 months and still have a quality life. I have hd no side-affects exceept for slight headache on pill days.

I've taken my first week's dosage (300 mg per day) and have felt o.k., except for fatigue. I've completed the radiation and Temodar 40 day treatments, now on the monthly dose. So far so good. Wish I had more energy, and I sleep a lot.

My father is 46 and was on this for 42 days with radiation and then once this was done he did 5 days of 300 mg once a month. This was done for 3 months until the tumor had begun to grow again. So, it made the tumor stable for only a short time. Now on IV avastin and camptosar...so far so good, doing great.

My husband has taken Temodar for 6 months (5days per month) and his major side effect if a rash that develops 1 - 3 days after he stops taking it. I am also noticing significant fatigue and some impairment in his ability to follow complex directions or plotlines. His brain tumor has continued to shrink as evidenced by MRIs taken every 3 months. What are the longterm effects?

My mother has been on this drug for 2.5 yrs now. I am wanting to know if anyone else can validate the side effects we (family) are seeing are due to the drug. She is a completely different person from then to now. Many side effects we are seeing are lack of concentration, short term memory, personaltiy changes, moody, trouble with numbers-cognitive changes, equalibrium is completely off and can not walk far w/out asst., fatigue all the time, etc.... Please could some one out there tell me these are from the chemo drug? I asked my mom's dr and he could not provide me with as answer, because I do not think he knows what Temodar can do to people longterm......

My husband is 52. Has been on 340 mg Temodar since February 2008, taken 5 days on and 23 off immediately before going to bed w/Anzemet to avoid nauseated feeling. Very fatigued but keeping the tumor away. Short term memory is affected but can't say it is from the drug and not the surgery itself.

began treatment 2 weeks ago so far no side effects

They found my brothers gbm4 in 2007 he had surgery, with a 80% reduction ,temodar,radiation,for 6 months .he has been in remission for four years now and just last month the tumor started to grow again,he is good health so we are givin it a try again,here's to 4 more years. the combination of all three has giving us a priceless gift?

Surgery 10/09 (tumor removed), then 34 radiation + 140mg temodar treatments, 30 day rest period, then began clinical trial of 220mg temodar, 7 days a week, every other week, plus 800mg of Celebrex every day. Chemo week began as not too bad, non-chemo week was great but not I do get tired if I don't control my activities. I am on my 6th month of temodar and so far no signs of another tumor. I don't know if it is too soon to rate temodar but I have nothing bad to say about it.