Temodar User Reviews

Temodar User Reviews

Now you can gain knowledge and insight about a drug treatment with Patient Discussions.

Here is a collection of user reviews for the medication Temodar sorted by most helpful. Patient Discussions FAQs

The following Patient Discussions have not been medically reviewed. See additional information.


    Comment from: Female on Treatment for 1-2 years (Patient)

    I Hve taken this 18 months and still have a quality life. I have hd no side-affects exceept for slight headache on pill days. Published: January 21, 2008 ::

    Comment from: Jimak, 75 or over Male on Treatment for 1-6 months (Patient)

    I've taken my first week's dosage (300 mg per day) and have felt o.k., except for fatigue. I've completed the radiation and Temodar 40 day treatments, now on the monthly dose. So far so good. Wish I had more energy, and I sleep a lot. Published: March 24, 2008 ::

    Comment from: scott, 35-44 Male on Treatment for less than 1 month (Patient)

    began treatment 2 weeks ago so far no side effects Published: August 02, 2008 ::

    Comment from: mytwotumors, 25-34 Female on Treatment for 2-5 years (Patient)

    I am in my 21th month of temodar out of 24. I've been really tired and experienced bad side effects during 3 of the 5 days of treatment on average. I'm disappointed because my tumors (two locations) were inoperable and have barely shrunk. But the stabilization is perfect. I would hate having to take this drug for the rest of my life as the symptoms caused by the tumors have not disappeared (seizures, vertigo, dizziness and distorted apprehension of space). What's the use of two years of fatigue in your life for this???? Published: June 14, 2008 ::

    Comment from: 19-24 Female on Treatment for 1-6 months (Caregiver)

    My father is 46 and was on this for 42 days with radiation and then once this was done he did 5 days of 300 mg once a month. This was done for 3 months until the tumor had begun to grow again. So, it made the tumor stable for only a short time. Now on IV avastin and camptosar...so far so good, doing great. Published: February 07, 2009 ::

    Comment from: 25-34 Female on Treatment for 2-5 years (Caregiver)

    My mother has been on this drug for 2.5 yrs now. I am wanting to know if anyone else can validate the side effects we (family) are seeing are due to the drug. She is a completely different person from then to now. Many side effects we are seeing are lack of concentration, short term memory, personaltiy changes, moody, trouble with numbers-cognitive changes, equalibrium is completely off and can not walk far w/out asst., fatigue all the time, etc.... Please could some one out there tell me these are from the chemo drug? I asked my mom's dr and he could not provide me with as answer, because I do not think he knows what Temodar can do to people longterm...... Published: October 01, 2008 ::

    Comment from: webmd, 35-44 Male on Treatment for 1-6 months (Patient)

    Second iteration of Temodar (2009), last used in 2003. Expect similar effectiveness and more rounds in subsequent years. Every 5-6 years is hardly something to complain about. In terms of ease of use, can't beat it (oral at night vs. IV/portacath) and the side effects have been limited in comparison to previous IV-introduced therapy. I'm satisfied with the drug. If you prefer more agressive therapy, read cancer research articles for something to augment Temodar. In my case, I'm taking EGCG tablets; a study at USC suggests EGCG increases chemosensitivity to Temodar. (survival:13 years, 3 months) Published: February 10, 2009 ::

    Comment from: lilsadiejgb, 55-64 Female on Treatment for 5-10 years (Patient)

    I have taken Temodar since 9/99 for metastaic melanoma of the brain. The doseage was reduced to 100mg for seven days one week on and one week off. I do have fatique constantly. I had a total of nine brain tumors and have been NED since 8/2000. Published: October 22, 2008 ::

    Comment from: camaroman, 45-54 Male on Treatment for 1-6 months (Patient)

    I am on 42 day treatment paired with radiation. until recently no side effects, now experiencing smothering effect anywhere from 2 to 7 hrs. after taking. cannot lay on back and breath during this time. eventually it subsides and I can go to bed. Has anyone else experienced these symptoms? I might mention during this time there is acute discomfort at bottom of left fib cage and tenderness in chest muscle. Published: February 01, 2009 ::

    Comment from: blessed, 35-44 Male on Treatment for 2-5 years (Patient)

    Have had good experience so far on Temodar (295mg). I had 2 tumors removed and decided against radiation and taking only the oral chemo. Scans have been good so drug is working. Not to many side effects other than lack of concentration and horrable constipation. Published: June 24, 2009 ::

    Comment from: blackschnauzer, 45-54 Male on Treatment for 1-2 years (Caregiver)

    My husband is 52. Has been on 340 mg Temodar since February 2008, taken 5 days on and 23 off immediately before going to bed w/Anzemet to avoid nauseated feeling. Very fatigued but keeping the tumor away. Short term memory is affected but can't say it is from the drug and not the surgery itself. Published: June 11, 2009 ::


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