My dad just started this treatment. He has stage 4 renal cell carcinoma and has had one hell of a year. This is the third treatment, after Nexavar and Sutent. He has just had one treatment so far and is due his next one Friday, so I will post again when I know more about it. Published: October 08, 2007 ::

Three years I had one kidney removed because of malignancy. Period CT scans afterward were clear; however, recently a new tumor was discovered, metastasized renal cell carcinoma. Started on Sutent but it had a dangerous effect on heart function. Switched to Torisel and have been on it 3 months now. Tumor has not grown and the active area has reduced slightly. Side effects are not a problem considering the probable outcome if I wasn't taking it. Published: February 06, 2008 ::

I have been taking Torisel for two months with minimal side effects. My CT scan showed my tumors had not grown. Published: December 31, 2007 ::

so far so good, have metatastic renal cell tried nexavar, didnt work now on torisel for 6 months tumors are stable, no growth or new ones, i pray this keeps working. my worst side effect is being extremely tired after the pre med of benedryl. Published: February 02, 2009 ::

I have been taking Torisel weekly for 9 months. Side effects: change in taste, mouth sores, weight loss. Have had two CT scans since taking Torisel. Tumors in lungs, adrenal, & remaining kidney have stopped growing.I took Nexavar and Sutent but side effects were too much, even tho the drugs were effective in shrinking tumors. Published: February 22, 2009 ::

I HAVE STAGE 4 RENAL CELL. MY KIDNEY WAS REMOVED BUT I HAVE MULTIPLE NODULES IN THE LUNGS, DUE TO RCC METASTESIZING. I HAVE BEE ON TORISEL FOR 6 WEEKS. HAVE GAINED 10 LBS! DR SAID IT MAY BE BECAUSE THE TORISEL IS WORKING. HAVE A RASH ON BACK, BUT SOMEONE SAID THAT PROBABLY MEANS THE TORISEL IS WORKING. WILL HAVE CT SCAN IN A FEW WEEKS. OVERALL,VERY SATISFIED AND PRAY THIS IS WORKING! DONALD Published: September 15, 2008 ::

I have metastatic recal cell carcinoma Sutent & Nexavar did nothing. Torisel was easy use and significantly reduced my tumors after 8 treatments. Then it stopped working. Over the next few months of treatment the tumors in lungs did not change while those in my abdomen & liver increased in size. Published: February 04, 2009 ::

Ihave had 9 treatments with this drug. The only side effect that I have noticed is taste change. My last CT scan showed no change in the size of my cancer. Published: December 04, 2008 ::

My fiance has been on Torisel 25 mg's since Jan. 11 2008, he has stage 4 mrcc, altho kidney removed in Nov. mets to both his lungs..He had 3, 25 mg's and then his borderline scans after his 3rd treatment he had 5-10% shrinkage after 3 doses.. He is due for his next catscan in 2-3 weeks and we'll see how those turn out...He has a a few problems with getting a very bad rash, but with a slight mg steriod, has only had to take a week off a month, and with the original bad rash came he had to take 3 weeks off, plus drop to 15 mg, for 2 weeks up to 20mg Monday back up to 25 mg's...I look at all the targeted drugs are hard and i'm not expecting to much shrinkage, but any shrinage is better than nothing or regrowth...So we are both very pleased with Torisel and a very understanding oncologist..It's helped up thru a very difficult time, making decision neither one of us thought we'd ever have to make....Thanks for reading... Published: April 16, 2009 ::

I have now received 37 treatments. I haven't had any bad reactions but the taste change. Everything tastes bad! My cancer is still growing but slowly. I have renal cell carcinoma in 5 spots. I just finished radiation treatment for quality of life issues. Now I can walk again. Published: June 12, 2009 ::