Torisel User Reviews

Torisel - User Reviews

Torisel User Reviews

Now you can gain knowledge and insight about a drug treatment with Patient Discussions.

Here is a collection of user reviews for the medication Torisel sorted by most helpful. Patient Discussions FAQs


Comment from: rclj1, 55-64 Female on Treatment for 1-6 months Published: March 24

today was my wife's 14th treatment of torisel, and we are scheduled for our second ct/scan while on this drug. The first scan was promising after taking both sutent and nexavar with little positive results. Since she has been on torisel there have been Fatigue after each dose and a blood transfusing because of the effect of torisel reducing blood counts. Thankfully no mouth soars so far

Related Reading: Fatigue

Comment from: Mamaflo, 55-64 on Treatment for 1-2 years Published: January 18

My husband (now 58) was diagnoised with advanced renal cell carcinoma in sept 2003. He has had a kidney and adrenal gland removed. He was initially put on Nexavar and was on it for a little more than 2 years (lots of side effects). He has now been on weekly infusions of Torisel for 13 months. During this period he has developed mets in his liver, spine, and ribs. He had some daily radation on the spinal mets in addition to the torisel with amazing results. The mets in his rib and liver however continue to increase in size. His oncologist is optimistic though and wants to continue with the Torisel if possible. The major side effect he has experienced is swelling of his get/ankles. Keep believing this disease can be cured, there are new treatments developed annually.

Comment from: roberjoel, 55-64 Female on Treatment for 1-6 months (Patient) Published: December 04

Ihave had 9 treatments with this drug. The only side effect that I have noticed is taste change. My last CT scan showed no change in the size of my cancer.

Comment from: Kandy, 65-74 on Treatment for 1-6 months Published: March 16

My husband has received weekly 25mg IV Torisel beginning Jan 18, 2010 for his mRCC. The one obvious tumor in his neck has decreased by 1/2 the original size. Main side effects: bitter taste, no appetite, moderate itching and rash (Sinequan given), elevated blood sugar, cholesteral, triglycerides, anemia. Today he was given an injection for the anemia. Does anyone know what it may have been? It was not Procrit. History: kidney removed 2000; part of 2nd kidney removed 2002; Thyroidectomy/mRCC 2009; Sutent 50mg/20 days 2009, bad side effects.

Related Reading: itching | Sinequan | anemia

Comment from: Cameron, 45-54 Female on Treatment for 1-6 months (Patient) Published: November 01

I had my left Kidney removed last July (2008) and it was rated stage III/IV. Went on Sutent and could barely handle the side effects. A CT scan in January 09 showed RCC in the lymph nodes. A July CT scan showed the Sutent had stopped working and the spots were growing. Sutent was stopped. I started on Torisel on Sept 11th, 09. After 4 treatments, the rash/acne was so bad, (face, scalp, chest, and mouth/tongue)the fifth week was canceled to give me time to recover. Started 6th week at a slightly reduced dose and the acne came back but not in my mouth. The CT scan on October 16th showed a reduction in the lymph nodes. I have had 7 treatments so far, and I am on antibiotics to control the acne.

Related Reading: acne

Comment from: DONALD, 65-74 Female on Treatment for 1-6 months (Patient) Published: September 15

I HAVE STAGE 4 RENAL CELL. MY KIDNEY WAS REMOVED BUT I HAVE MULTIPLE NODULES IN THE LUNGS, DUE TO RCC METASTESIZING. I HAVE BEE ON TORISEL FOR 6 WEEKS. HAVE GAINED 10 LBS! DR SAID IT MAY BE BECAUSE THE TORISEL IS WORKING. HAVE A RASH ON BACK, BUT SOMEONE SAID THAT PROBABLY MEANS THE TORISEL IS WORKING. WILL HAVE CT SCAN IN A FEW WEEKS. OVERALL,VERY SATISFIED AND PRAY THIS IS WORKING! DONALD

Comment from: toby, 45-54 on Treatment for 1-6 months Published: February 15

Extensive skin lesions and pruritis


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