lung transplant in 2003, new lung has cmv while I do not.I take one pill a day and so far it has kept me free from the virus. My only concern is the cost of valcyte!!! I am on medicare and myself and others suffer not from the transplants but from the cost of VALCYTE which is why we know of many who have given up the chance to live because of the drug. how sad for our country that a drug that does work is sometimes impossilbe to afford. Published: December 27, 2007 ::

cost over $3300 per month Single lung transplant recipient june 2007 disabled on SS & medicare may have to DIE because i cant afford it. have been on and off this med, going to ACYLOVIR BUT THE INFECTION COMES BACK EVERY TIME I CHANGE.VALCYTE IS SO COSTLY that i dont know how long i can take it. Published: March 05, 2008 ::

just started, lost twenty three pounds, have an esophageal ulcer,gastritis, heartburn, reflux, and an ulcer on my ankle- all before I was prescribed this. NOT DIABETIC, WAS TOLD MY BLOODWORK OPPOSITE OF BEING ANEMIC? Published: July 15, 2009 ::

I really don't know how effective this is. I have just begun taking it and was doing research (my pharmacist told me nothing) of this drug, side effects, etc. was wondering if it helped others (should at the cost..luckily this time I have insurance). I am just beginning today, so I will post back when I have taken for awhile and know more. Oh, I am taking it for CMV, for which my IGg levels have been very high for 5 years and the acyclovir not helped. Iv'e been so sick the last 5 years and so many doctors, i hope this works. Most drs don't even check for this illness!! Published: July 04, 2009 ::

Used this as a liquid med for about 6 weeks after transplant then developed a rash and vomiting, so stopped it. Patient info and all med info I found about this med said that it has not been studied in the pediatric population. Also can react with other anti rejection meds (Cellcept). Published: June 08, 2009 ::

This medication has done just fine for me. I can say that without my health insurance I would not be able to afford this medication. Market price is about 2500-3000 per month. With my prescription drug coverage it is only $25.00 I can say that I am lucky in that regard. Published: May 21, 2009 ::

I had it after an organ (liver) transplant when my immune system was low. Published: April 28, 2009 ::

CMV retinitus diagnosis 10 years ago. HIV+ now for 20 years. Blind in one eye but virus has been controlled since then, now with Valcyte. No serious side effects so far. But the thought of necessary lifelong treatment is sort of depressing. Published: April 04, 2008 ::