I have been dx with severe iron deficiency anemia that has not responded to oral iron preparations. Over the past two years I have had six rounds (1 dose weekly for four weeks). Twenty-four iv's later I have finally gotten my ferritin levels in the low normals. My hgb levels and quality of rbc's is also rising. At the same time I was dx with an auto-immune disease (undifferentiated connective tissue disease). Between the two I have experienced severe fatigue. The venofer has helped alliviate some of the fatigue. It has also helped with the restless leg symptoms that often accompany severe iron deficiencies. venofer is not without side effects but if it helps my body make quality rbc's it is worth it. Published: December 06, 2007 ::

SO FAR, SO GREAT! VENOFER IS WORKING EXCELLENT! I CAN'T TAKE ORAL IRON. I TAKE 2 INFUSIONS TWICE A WEEK AS MY RED BLOOD ARE EXTREMELY!!! LOW. I HAVE NO ENERGYWHAT SO EVER, HAVE A TERRIBLE TIME BREATHING, SITTING DOWN IS OK, BUT WHEN I STAND UP I FEEL LIKE SOMEONE HAS PUT A BAG OVER MY HEAD. SO FAR I HAVE HAD 3 TREATMENTS AND THINGS SEEM TO BE IMPROVING. I AM SCHEDULED FOR 6 MORE!! I WOULD RECOMEND THIS TREATMENT TO ANYONE THAT CAN'T TAKE ORAL IRON. MINE IS INJECTED INTO THE VEIN AT A BLOOD DISORDER CLINIC AND TAKES ABOUT AN HOUR AND A HALF! NO COMPLAINTS SO FAR! Published: December 19, 2007 ::

I have had 2 treatments so far for anemia. It has been relatively easy, takes about 1hour or so. I have 3 more treatments, then go get another blood test and see the hematologist. I'm hoping that this does the trick as I was allergic to InFed, and am unable to absorb oral iron. I have had a lot of symptoms previously, which have disappeared due to a blood transfusion I had about 4wks ago. I am anxious to see if this treatment continues to make symptoms dissapear, i was bothered by RLS, leg cramps, shortness of breath, palpitations, sore/sensitive tongue, cracks in lips, etc.. I am so glad to get a break from all that and am encouraged so far. Published: March 23, 2008 ::

I cannot take oral iron and have so far had two treatments with Venofer.The side effects were horrible the first time. Back pain, vomiting and nausea, drop in BP, extensive hives. But the send treatment was much better, since we were able to take care of the side effects. I find it more convenient and certainly less painful that getting iron IM. I have done my tests and will see my Hematologist next week. Hopefully I have improved. Hopefully I will only need a few more treatments. Published: September 07, 2008 ::

I have very low ferritin levels. I have to take a total of 4 treatments of Venofer. I took my first one two days ago. The side effects were horrible! They gave me Bendaryl in my IV and I started to feel better. I was about to faint. My chest was crushing in. Next time, I'll get Benadryl before the treatment and hope that helps. It's just strange how I felt fine during the whole treatment and got VERY sick after I started walking around. Published: September 21, 2008 ::

I had a terrible reaction to it and swelled up and had a hard time speaking my blood pressure dropped to 60/40 and ended up in the emergency room Published: July 09, 2008 ::

I'm going in for my second round of venofer treatment. The first time the only adverse effect it had was severe itching. There was no visible rash. This time I will be pre-medicated with solumedrol and possibly Benadryl. Looking forward to having more energy and just feeling better overall. Published: October 30, 2008 ::

I was going into Kidney failure due to a greatly enlarged prostate. After beginning to use a catheter, the kidneys have begun to recover. In the mean time my nephrologist got the Venofer treatments (3 total, 1 week apart) approved. I had no noticeable side effects after the first treatment. It was done at a local hospital in the cancer clinic where all types of IV treatments are carried out. I ate breakfast, then reported to the hospital at 7:30 a.m.. I was done before noon, including a lunch served about 11 a.m. Published: October 30, 2008 ::