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Spina Bifida and Anencephaly (cont.)

Where can I get more information?

For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke, contact the Institute's Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov

Information also is available from the following organizations:

Disabled Sports USA
451 Hungerford Drive
Suite 100
Rockville, MD 20850
dsusa@dsusa.org
http://www.dsusa.org
Tel: 301-217-0960
Fax: 301-217-0968

March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203

National Dissemination Center for Children with Disabilities
U.S. Dept. of Education, Office of Special Education Programs
1825 Connecticut Avenue NW, Suite 700
Washington, DC 20009
nichcy@aed.org
http://www.nichcy.org
Tel: 800-695-0285 202-884-8200
Fax: 202-884-8441

Spina Bifida Association of America
4590 MacArthur Blvd. NW
Suite 250
Washington, DC 20007-4266
sbaa@sbaa.org
http://www.spinabifidaassociation.org
Tel: 202-944-3285 800-621-3141
Fax: 202-944-3295

SOURCE: National Institute of Neurological Disorders and Stroke, National Institutes of Health



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Spina Bifida - Describe Your Experience Question: Please describe your experience with spina bifida and anencephaly (neural tube defects).
Spina Bifida - Symptoms Question: What symptoms have you experienced with your spina bifida or anencephaly (neural tube defects)?
Spina Bifida - Treatments Question: What treatments have you received for your spina bifida?
Source: MedicineNet.com
http://www.medicinenet.com/spina_bifida_and_anencephaly/article.htm

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