Betaseron

USER REVIEWS

Comment from: Colorado Native 45-54 Female 5 to less than 10 years Patient Published: March 14

I have been on this drug for 7 years now

Comment from: pamhorne 65-74 Female 1 to 6 months Patient Published: November 13

I've been using Betaseron for 3 months now, having switched from Copaxone. I find the Betaseron injections much easier to take and not at all painful; however, I continue to experience flu-like symptoms for hours following each injection. I've tried Tylenol, Ibuprofen, and aspirin, but I still get the deep aches, chills, headache, sometimes fever. Often my skin even hurts. I hope this stops soon.

Related Reading: betaseron | copaxone | flu

Comment from: 45-54 Female 5 to less than 10 years Patient Published: October 03

I've been on Betaseron for 6 years and have had no new lesions or relapses. I'd like to get off shots but am afraid other medications wouldn't be as effective for me.

Related Reading: betaseron

Comment from: 65-74 Female 10 years or more Patient Published: July 05

Been on 14+ years. Extremely satisfied. Only one new lesion in 14 years of treatment. Just notified by my insurance company they will no longer cover this drug and want me to switch to something else.

Related Reading: treatment

Comment from: smdoty 25-34 Female 2 to less than 5 years Patient Published: April 10

Been on Betaseron for nearly 4 years now. Still get chills / aches if I forget to take acetaminophen with it. Also still have redness / inflammation at injection sites for several months afterwards. Have had 2 severe injection site reactions resulting in small open wounds & brusing. I manually inject (the auto-injector clicks loudly & makes me jump) & self-injection gets tiresome / difficult to do after awhile. -----BUT------ I have only had 1 mild relapse in 3.5 years while using Betaseron...I had 3 crippling (while occurring) relapses during the 1 year I used Copaxone. I'm sticking with Betaseron.

Related Reading: betaseron | copaxone

Comment from: 55-64 Female 5 to less than 10 years Patient Published: February 03

flu like symptoms at first but doing very well. been on it for 8 years now. wouldn't trade it for nothing else.

Related Reading: flu

Comment from: Sjfnj 45-54 Male 6 months to less than 1 year Patient Published: October 11

Betasearon seems to work very well for me. Not many side affects Very little to no pain taking the shot. Just don't stick it in the muscle...

Comment from: Susan 45-54 Female 10 years or more Patient Published: August 21

My husband helps me with injections where I can't. He's extremely supportive of me.

Comment from: DebTed 55-64 Female 6 months to less than 1 year Patient Published: July 10

I hesitated taking medication for my MS symptoms. When the right side of my face went numb and the toes on my feet went numb, I decided it was time. I no longer have new symptoms but the numbness is still an issue.

Comment from: Tyler 25-34 Male 6 months to less than 1 year Patient Published: June 20

It took me awhile to figure out that the stinging is mostly caused from the tiny air bubbles in the needle, once I figured that out it didn't sting as bad. Also this medication makes me tired all the time, even after getting a good night's sleep. That is one down fall that I don't like.

Comment from: sue 55-64 Female 6 months to less than 1 year Patient Published: April 18

this has been the only drug for my ms my body has not rejected. i am happy . only issue I have is the stinging as medication is injected.

Comment from: Darlene 35-44 Female 1 to less than 2 years Patient Published: April 11

Went from rrms to spmm while I was on this drug. Worse decision I ever made as I was doing so well. I even received an apology from my Neuro

Comment from: Vicki 55-64 Female 5 to less than 10 years Patient Published: December 15

I have terrible site reactions and knots (scar tissue?) where I have injected for years. My body rejects the syringe at times because of these knots, I am running out of locations to use. Here is a tip to keep bubbles out, after mixing hold the syringe at an angle rather than straight up and down and draw it in slowly.

Comment from: dqincww 55-64 Female 2 to less than 5 years Patient Published: August 11

i found that holding the syringe in for a couple of seconds after injecting medication, my injection site bruises/marks ceased. it is really easy to use, much more so that when i was on avonex (ever see the size of that needle!) but i think it is a normal reaction to hesitate when you're going to stick a needle in yourself. oh, and btw, it had a profound effect on improving my health after a very frightening exacerbation.

Related Reading: bruises | avonex

Comment from: Sue 55-64 Female 10 years or more Patient Published: June 29

Have some skinsite reactions. Have redness that comes and goes. Depending if hot or cold.

Comment from: bbgirl60 45-54 Female 1 to 6 months Patient Published: December 03

This has been easy to inject with the provided betaject system and I have learned when and how to massage the injection site when I did not get all the bubbles out. Learning to get all the bubbles out is the trick...they STING when they go in!

Comment from: Happy 55-64 Female 10 years or more Patient Published: October 01

I've been using this Betaseron medication twice since 1999. For a short period of time I switched to another, but came right back to the Betaseron. I had only one relapse,and that was in 2009.

Related Reading: betaseron

Comment from: gayleh 45-54 Female 10 years or more Patient Published: September 05

I have been on Betaseron for 16 years. At different times I have had problems with injection site reactions and flu-like symptoms but overall I have remained extremely healthy which I attribute to being on the medication. I feel very fortunate.

Related Reading: betaseron | flu

Comment from: cdb 55-64 Female 1 to 6 months Patient Published: July 20

I was allergic to copaxone, tried rebif and was sick with every shot and my liver enzymes started climbing, so my doctor switched me to betaseron. I have to mix it so it takes more time to prepare but my liver enzymes, after 6 months on it, are back to normal, and I have only had two times when I was sick. Normally I just have a mild headache that tylenol takes care of. My MRI was good with no new lesions, so my doctor and I are both happy.

Related Reading: copaxone | rebif | liver

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Medical Editor: John P. Cunha, DO, FACOEP

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