Felbatol

USER REVIEWS

Comment from: kathleen35-44on Treatment for 1-2 years Published: October 08

I have tried all of the epilepsy drugs, this was a last resort. Since I started taken it I have not had any grand mal seizures. I have had only a few episodes in which I feel as if I may be starting one, but nothing has come of them.

Published: December 12

this medication causes severe insomnia. i cannot sleep and i have to take ativan, sometimes high doses. it is not fun, but the kicker is it really works.

Comment from: 19-24on Treatment for 5-10 years Published: January 10

I was very wary of this medication because I was told about the serious side effects such as liver & kidney failure, severe bruising, and aplastic anemia. I gave it a shot and paired it with 300 mgs Lamictal & 500 mg Depakote. I am 20 and am finally able to drive. That is how well I have responded to this drug. I HIGHLY recommend it to any Epileptic who's at the end of their proverbial rope with medication options. The was a study done in London with Felbatol & Lamictal users and it proved more times than not to be a successful pair. I stay on a low dose of Depakote ER to supplement the pair. Just Lamictal & Felbatol isn't enough. My dosage is 2400 mgs of Felbatol, 300 mgs of Lamictal, and 500 mgs of Divalproex ER (generic of Depakote). Ladies, if you are on seizure meds for Epilepsy, DO NOT FOOL YOURSELF - pregnancy is NOT an option on these types of serious anti-convulsants!! I had to have a partial hysterectomy to stop my hormone fluctuation and extreme bleeding. Hormone fluctuation can cause seizures, no matter if you're taking Felbatol or not. With all this having been said, take your felbatol AFTER you have eaten and drank something such as milk or orange juice. Stay away from Grapefruit juices and Grapefruit in general. If you miss a dose of your medicine, do not double dose on your next dose you're supposed to take. It will have an adverse reaction and get you very ill and cause seizures, or so I have experienced.overall though I would have to give this drug two thumbs up!

Comment from: 45-54on Treatment for 10+ years Published: November 02

I have been on this drug for 20 years with no problems or side effects. I tried some others but they made me feel like I was in a fog. I wish more MD's knew about it and were comfortable with it. I have been in pharma for over 27 years and understand how drugs work and SE. This should be prescribed more often..at least give people an option. I am not staying it's for everyone but it sure works for me.

Comment from: Penny45-54on Treatment for less than 1 month Published: March 11

Be very careful when you begin this drug. If you begin feeling sick w/ a fever & a rash w/in a few days to week of beginning this drug, see a doctor immediatrely, & be SURE you tell them that you've just begun this rx. It can cause Stevens Johnson Syndrome, whose rash has to be treated like burns, has caused some of my few eye lashes that still grow to grow in towards my eyes, creating the need for many ccrnea transplants, & many other permanent, nasty effects!!! If not caught soon enough, it'll kill you. Unless you bring up your new usage of this medication, the physician may not diagnose you in time.

Comment from: 25-34on Treatment for less than 1 month Published: January 06

OMG! I have no appetite, headache, cramps, and very bad ??diarreaha??--but no seizures. Go figure. I have been taking it for 3 weeks now and it helps the seizures, but the side effects are getting to the point of almost making me give up on it. I am extremely uncomfortable.

Comment from: texasmom07200035-44on Treatment for 1-2 years Published: December 01

Why in the world do I whount to take a med. that could couse you to have a blood transfusions,a bone marrew transplant. Annd no telling what eles????? And shouldnt the dr. tell you about the sied side effects. not just. Well it may cause loss of appetite, headache, and so on. And nothing about the sereus stuff????????? I lived with an ear ache for over a yr. and a half. Whent to 3 dr.s and thay told me there was nothing wroung with it . I looked up felbatoland its one of the sied effects. The dr. that gave it to me even told me it was nothing. My family dr. finly took me off of felbatol. And my ear ache whent a way. Now isunt that funny???

Comment from: 7-12on Treatment for 2-5 years Published: October 30

My daughter has had seizures her entire life. We have used almost every medication combo there is. She has absence seizures; she seemed to be having one every time I looked at her. Than we found a Dr. who knew what to do. I will be forever grateful to him. Our daughter still had seizures but they are just a handful a day. She can learn, play and has a great outlook on life. She is on Lamictal, keppra and felbatol. I am so thankful for this medication. She has gotten use to the blood tests.

Comment from: Excellant25-34on Treatment for 6 months to - 1 year Published: May 20

This medication has really did the trick. I was taking keppra and still had seizures. Since adding felbatol to keppra I have been seizure free.

Comment from: ADAX35-44on Treatment for 10+ years Published: February 05

I have been taking Felbatol for the last two years, it's the ONLY drug that works for me. Monthly blood tests are required to check for aplastic anemia but that is the only inconvenience. Losing your appetite isn't so bad, at least you lose weight!. It is the ONE drug that works for me!

Comment from: CA girl in CT35-44on Treatment for 1-2 years Published: May 01

This was my last resort to controlling a 10 year battel with partial and grand mal seizures. I have tried EVERY other medication on the market, both individually and as part of a cocktail. I started taking this med a year ago (paired with the highest doseage of both Keppra and Topamax) and I have not had a seizure since. I have now weened off the Topamax, which made me moody and caused problems with word-finding. I am VERY happy with this med and wished more doctors would take the "risk" of prescribing it to epilepsy patients. With careful and diligent screening, the high risk is a mute point.

Comment from: wms45-54on Treatment for 2-5 years Published: December 24

It is the best med I've ever taken, but the side effects are TOO much! I've taken every med available & none worked as good, but I'm giving up. I've had no appetite, EXTREMELY dry eyes & skin,causing it to itch like crazy! My eyelashes also turn the wrong way, I'm constantly curling them. My Dr. also didn't tell me of any of the side effects, also NEVER tested my blood. I have trouble sleeping(fatigue), I'm angry & irritable, depressed from being so sick. My stomach has stopped digesting food properly(now I have to eat special food). I don't recommend it. Seeing all those "extra" Drs. for all the side effects has cost me TOO much money!!

Comment from: jace45-54on Treatment for 10+ years Published: June 21

I have petite grand mal seizures. Really hard to control because there so unpredictable. I've been on every type of med's out there and Felbatol is the best by far. It's the only one that has actually done something about controlling these seizures while not leaving me in a state of sleepiness, while keeping me in a decent state of mind. Loss of weight is a plus. I've been on it for 16+yrs. Definately say the benifits out ranks any risk involved (for me).

Comment from: Black Diamonds45-54on Treatment for less than 1 month Published: May 07

The worst drug ever insomuch the Neurologist quickly took me off of it as soon as tirades of side effects began to show up; didn't even last 2 week on it and plus increased seizures as a result of it? Geesh - I would rather go to a Haunted House than to ever touch this drug again!

Comment from: dmbutl0145-54on Treatment for 10+ years Published: May 18

i when there was no other drug to try I was placed in the PhaseIII Investigational Study of Felbamate. I have been 100% seizure-free since it has been almost 20 years now. A new doctor now wants me to try one of the newer drugs, Keppra, I am very reluctant. Felbatol has changed my life and I want to stay with what I know works!

Comment from: SANDY35-44on Treatment for 2-5 years Published: July 15

i'm allergic to most given seizure med. felbatol has been a wonder drug for me. i don't like the blood test I HAVE TO GET EVERY MONTH BUT HEY THIS IS THE MED THAT HAS WORKED THE BEST FOR ME.

Comment from: Samdra13-18on Treatment for 6 months to - 1 year Published: November 28

severe lost of appitite , insombia, moody, aggivation and angry a lot.

Comment from: Sparkertn45-54on Treatment for 10+ years Published: February 26

It has been only medication that has stopped my seizures Love it.THANK YOU TO THE MAKERS OF IT.

Comment from: BARney7435-44on Treatment for 10+ years Published: February 15

I,ve been on this drug for almost fifteen years now. It has been a life changer I can drive. I hold a full-time job at the local grocery store. I have developed the confidence to have a meaningful realationship with the opposite sex. it's the first drug that really worked for me.

Comment from: jengle7-12on Treatment for 1-2 years Published: November 22

I can not express enough how please we are with this med for my daughter. She was born with a rare genetic disorder, Double Cortex Syndrom, DCX or DSX. She is considered mild to moderately mentally retarded w/brain adnormality which includes epilepsy. She has had about 10-12 different types of seizures & we finally added felbatol to her med regimen almost 2 yrs ago & it has helped tremendously, has seizures most everyday but much less intense & only 10-20 a day (trust me this is much better). She does suffer insomnia which we give her melatonin & it works, not much of an appetite so we give her pediasure & let her eat pretty much what she wants when she wants, dry itchy skin but we put lots of lotion on her daily which helps, as well as anger spells (also due to brain adnormality). We are blessed she hasn't had depression symptoms and this may be due to her being 11 yrs of age.

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Medical Editor: John P. Cunha, DO, FACOEP

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