Comment from: BB 35-44 Transgender 1 to 6 months Caregiver Published: July 19

I've been taking Azathioprine for over two months now (May 2021) for my lupus. First on low dose then it was raised after a few weeks of taking it. There has been no improvement for me but there has been problems that was caused by Azathioprine. There has been blood in my urine, stomach irritation, occasional nausea, fatigue (even though I'm often fatigue because of lupus & other medications) as well as hair loss. When I was first diagnosed with lupus in April 2020, my symptoms were getting worse & hair loss happen majorly. By mid-October 2020 I was hospitalized for over a month. I started to improve but still not my full self. Still aches & pain but my hair was starting to grow back. However, taking Azathioprine has caused me to lose my hair again but in noticeable areas. Azathioprine isn't working for me & causing me problems.

Related Reading: lupus | fatigue | hair loss

Comment from: 45-54 Male 2 to less than 5 years Patient Published: October 06

Ulcerative Colitus for 6 years. Used Prednisone to bring UC under control, and Imuran has been a stable med during remission. Using for 3 years. No know side effects.

Related Reading: prednisone | imuran

Comment from: Female less than 1 month Patient Published: July 15

When arthritis flares up put on to control however, I am a diabetic and glucose levels get extremely high. Also tapering, don't like to take steroids swell up and hunger increases.

Related Reading: arthritis

Comment from: Barbara 45-54 Female less than 1 month Patient Published: May 13

I first started with this medication on 50mg. But after 5 days I started getting side effects. Abdominal swelling, pain, red blotches on my forearms, and unusual small bumps on my forearm. Now on 25 MG for 4 days now.

Comment from: Rick_G 55-64 Female 1 to less than 2 years Patient Published: March 04

Was diagnosed with ulcerative proctitis in 1985. Was upgraded to UC in 2012. Tried canasa, anusol, budesonide, uceris, etc., all didn't help much. Started Imuran 100mg daily, as well as Lialda; been taking for 15 months now. Pretty much been in remission. Changed my quality of life for the better. I almost feel normal!

Related Reading: canasa | uceris | imuran

Comment from: Gian 45-54 Female 10 years or more Patient Published: February 05

Similar to another reviewer, I have been taking Imuran along with Prednisone for over 35 years. It has worked well for me despite repeated instances of treatable skin cancers which may be related to the drug.

Related Reading: imuran | prednisone

Comment from: Engr 55-64 Male 5 to less than 10 years Patient Published: November 11

I've been on imuran since surgery in 2006. I've been system free except for some diarrhea and short gut B-12 deficiency which I attribute more to the surgery than the Imuran. I've had crohn's since 1968 and this has been the most consistent good time I've had.

Related Reading: imuran | diarrhea

Comment from: Coco 55-64 Female 10 years or more Patient Published: November 04

I have been taking imuran along with prednisone for 32 years as an anti rejection drug, it is definitely working for me. The only issue I have with it is that besides my recurring skin cancer bouts that I have had (about 7) my skin is showing more brown spots and catatonic. Dermatologists insist that it is not due to the imuran, I tend to differ. What do you think?

Related Reading: imuran | prednisone | skin cancer

Comment from: Lupie loser 45-54 Female less than 1 month Patient Published: September 26

I also have a heart condition and taking Imuran 50mg daily. My symptons are worse and am barely able to function. My doctors don't seem to listen or care, take drug and let me collect insurance is what i am getting from them. Has any one had hallucinations with this drug? I see things move that I know are stationary. Bridges moving 20 feet in air, makes for scary driving. Some one please help.

Related Reading: imuran

Comment from: Little bit 55-64 Female 1 to 6 months Patient Published: August 22

I have had systemic lupus since 1993. Have been on plaqunil since then and started Imuran a couple of months ago and have had no side effects yet. The meds seem to help. Just worried about side effects tho. ALso have Fibromyalgia.

Related Reading: lupus | imuran | fibromyalgia

Comment from: Lisa 45-54 Female 10 years or more Patient Published: March 01

This drug saved my life. I have tried every treatment nothing worked.

Related Reading: treatment

Comment from: Jgrif 45-54 Female less than 1 month Patient Published: February 13

I have had U/C for almost 6 years, tried many types of medications. A couple weeks ago, my doctor prescribed Imuran. On the 9th day I had a major allergic reaction and was sent to the ER. Severe diarrhea, dehydrated, red blotches all over my face, arms and legs. My potassium had dropped dangerously low. After a 6 1/5 stay at the ER, receiving medication, fluids and monitoring, I have recovered. Guess Imuran is not a good option for me. Back to the drawing board, Doc.

Related Reading: imuran | diarrhea

Comment from: rabbit 65-74 Female less than 1 month Patient Published: December 31

An hour or so after taking the drug, i experienced severe nausea followed by projectile vomiting lasting for at least 30 minutes. I was disoriented, difficulty walking, and needed assistance getting to the ER. I was hospitalized for 5 days

Comment from: ? 75 or over Female less than 1 month Patient Published: July 17

It added pain over my neuro pain. I had to take it at bed-time so that I could not feel this side effect.

Comment from: Bern- galway5 65-74 Female 5 to less than 10 years Patient Published: July 02

After years of being more ill after being sick. With anything, I finally got Ulcerative Colitis. My LFTs were over 400 when I got into Hospital, I had what I thought was a chill, and turned out to be The Ri-gors. I was sent up to Hospital. Put under A Brillient To the researchist who put me?.. I was born with this Disorder. I was also born Dyslexic which this darn thing will not make allowances for. So despite all the above I now. Have Thyroid problems, and after Abdominal pain since Xmas I had a gastric scope yesterday, so now I have inflammation in stomach. Mostly I,m good the Immuran has changed to Puri-netthol 50mg daily I don't get ill so often and feel pretty most of the time. But when I do get something it,s usually a big thing. I was diagnosed in 2007. I feel I was born in 1943 with my own bundle on board.

Comment from: ihaveucbutsowhat 25-34 Female 1 to 6 months Patient Published: June 23

I took Imuran for nearly 2 months at various doses before my doctor finally agreed to let me discontinue use. During its use, I lost 20lbs and developed several permanent health concerns. I now have bronchiolitis, chronic bronchitis, chronic pharyngitis, and muscle dysphagia involving my voice box. It hurts when I breathe and my voice often sounds strange. I wish I would've refused this medication. My disease is now under complete remission by following the specific carbohydrate diet. I was on Remicade IV 500mg for 11 months prior to and combination with Imuran and I've also been able to stop using that. If you have UC, even severe pancolitis like me, consider the SCD. It could save your life.

Related Reading: imuran | bronchiolitis | chronic bronchitis


Kidney Stones: Symptoms, Causes, and Treatment See Slideshow
Comment from: 19-24 Female 1 to 6 months Patient Published: June 11

Having many heat flashes, sweating a lot, bad joint pain, increased abdominal pain, bloated, bruising very easily.

Comment from: badmedicine 35-44 Male 1 to 6 months Patient Published: May 26

Not all meds help everyo9ne. I was sick the whole time I took it. I have increased abdominal pain and was ready to commit suicide. In quit and now doing alternative health. I am getting well. I wouldnt give this drug to to the devil its so bad

Related Reading: suicide

Comment from: nancy 45-54 Female 6 months to less than 1 year Patient Published: April 17

I have had U/C for 15 years, with several bad flareups. Asacol and prednisone did nothing to help, but after 6 months on Imuran I got my first clean colonoscopy in 15 years. I can run without flareups for the first time in more than five years. The only side effect I've noticed is some slight joint pain in my hips, but that could also be my 50 year old body after a long run!

Related Reading: asacol | prednisone | imuran

Comment from: Imuran 35-44 Male 6 months to less than 1 year Patient Published: February 16

can this Imuran oral cause blood sugar to raise?

Related Reading: imuran


Medical Editor: John P. Cunha, DO, FACOEP

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