Comment from: Elaine 55-64 Transgender Caregiver Published: April 28

I have been on this drug for a year. So far it has shown good results and my last scan was better. However, I have had some horrible side effects. Severe body pain, swelling, fatigue. The pain never goes away. I rarely have a good day. I take Hydrocodone for the pain and it dulls it but not for long. I saw my onc and he said he's going to stop this treatment because it has been such hell for me. I haven't had any hair loss but seriously I would take hair loss over the pain any day. My doc said that most people tolerate this drug very well but everyone is different. I have been dealing with a recurrence since 2015 so have tried many options and this one is one of the worst for me.

Related Reading: fatigue | hydrocodone | treatment

Comment from: Bruorst 35-44 Female 1 to 6 months Patient Published: June 01

Just finished cycle 5 of 6 and scans show it is working tremendously well. As for the side effects, I've had pretty severe constipation, lots of hair thinning and fatigue. Over all, it has been pretty easy to tolerate.

Related Reading: constipation | fatigue

Comment from: PeachRose 55-64 Female 1 to 6 months Patient Published: December 30

For 6 years I was on a number of oral meds and had stopped disease progression entirely. However, scans finally showed new bone mets, and for first time, mets in liver and lungs. The oncologist offered Navelbine or Abraxane, the advantage to Navelbine being that you do not lose your hair. After 4 cycles of drugs, scans were repeated and it clearly did not help. Lots of new bone mets, liver mets almost doubled in size, and 20 new lesions in lungs. I was so disappointed. Will begin Abraxane next week. As far as side effects, I had to take Neulasta shots a number of times because the bone marrow was so suppressed. Fatigue was a definite problem. Otherwise, very easy to take.

Related Reading: liver | navelbine | abraxane

Comment from: mm 45-54 Female 1 to 6 months Patient Published: October 23

Mets to bones and soft tissue mass in neck. Navelbine worked great. Was on weekly treatments for 6mo. Very slight side effects only leg fatigue at about 6mo. Went off because of the leg pain, but can go back on if the current treatment (Femara) stops working. Now my cancer is stable.

Related Reading: navelbine | fatigue | treatment

Comment from: MC 45-54 Female 1 to 6 months Patient Published: July 20

Until Navelbine, nothing was helping. I was diagnosed with bone Mets (breast cancer) in 2010. The pain in my spine and legs has been off the charts. I could barely walk. I thought my life was over. This Spring I began receiving Navelbine and I felt great almost immediately. My tumors are shrinking and my energy is back!!

Related Reading: navelbine | breast cancer

Comment from: Rainey 45-54 Female 1 to 6 months Patient Published: June 24

am currently on my 5th cycle of this medication - biggest complaint is the incredible fatigue. Nausea is dealt with easily with zofran/ativan combo. it has been keeping my cancer from growing (stable).

Related Reading: fatigue | zofran | ativan

Comment from: Nina2 45-54 Female 1 to 6 months Patient Published: October 11

Breast Ca stage 4111c. Started on taxol and Gemsen for 6 months every fri and skip one fri a month. After Bilat simple Mastectomies had 38 sessions of Radiation to Right breast and Axillia. I has involved LNd in supraclavicular also. I was considered cancer free but within a month after all tx's done felt new lumps in surgical margin and chest wall. Recurrence in soft tissue. Triple neg markers but docs were surprised anyway. Taxol for three months and resection of surgical margin. Went on Xelodal for six months and found more lumps on groin and opposite axillay ln. Navablin started in Aug 2012 lumps in both areas went down almost immediatley. Tremendous constipation since any chemo was instituted but Navabline makes me feel full and hungray at the same time then 2to 3 days of uncomfortable gastric symp : reflux,chest wall pain , muscle spasms on this also are hard to bear, I only take over counter acetemiophen arthritis stenght for pain. it does not go away but it gets the edge off so i can work and drive. Navabline seems to be working well and if i stay on top of the coexisting issues e.g. gastric, i'm ok, i'm tired too but that is not an issue for me. i'm 54 and i've been on chemo drugs almost constantly for 2 years. Lost hair weight , but got them back. people who meet me are shocked that i look well and can keep a fulltime job and go the chemo tx.

Related Reading: taxol | cancer | constipation

Comment from: charlynns3 75 or over Female Patient Published: March 25

Lowered white cells & alot of bone pain & wheezzing

Comment from: 65-74 Female 1 to 6 months Patient Published: February 23

The first dose resulted in horrible side effects, and I wasn't going to continue. But my CA125 dropped drastically, and my dr. cut the dose in almost half. Still have terrible pain, never ending between treatments. I am now pleased with low CA125, and my schedule is 2 on, 2 off as a result. I expect to stay on this dose until it doesn't work or something new comes out. Have had every symptom described here, some almost unbearable. But I am alive with ovarian cancer, working on 12th year.

Related Reading: ovarian cancer

Comment from: Boo 65-74 Male 1 to 6 months Caregiver Published: March 17

My husband has been on this for two months with severe nausea, loss of appetite and very tired all the time. He was diagnosed October 2009 and we are hoping for the best.

Comment from: nr 55-64 Female Patient Published: January 17

develope after severe chest infection severe gastritis severe weakness severe metastases

Comment from: 65-74 Female less than 1 month Caregiver Published: October 29

looking for info regarding

Comment from: 65-74 Female 6 months to less than 1 year Caregiver Published: April 15

Mom has been battling lung Ca for over 10 yrs with multiple treatments. We are now down to our last options & this drug has worked very well for her. She has tolerated it very well. Tired on day 2 but able to maintain excellent quality of life including shopping & exercise 2x wkly!

Comment from: debgreen 55-64 Female 5 to less than 10 years Patient Published: January 22

I use once a month with little or no side effects and I have been in remission since I started on it.

Comment from: Mylive 45-54 Female 2 to less than 5 years Patient Published: January 14

The treatment is working for me almost 4 years in I just hate the side affects but I rather live

Related Reading: treatment

Comment from: dAN 45-54 Male 1 to 6 months Patient Published: November 07

Liked to killed me till I QUIT IT

Comment from: pbetts 45-54 Female 1 to 6 months Patient Published: August 14

I have had no symptoms except the third day I'm very tired.

Comment from: CNA 35-44 Female 6 months to less than 1 year Caregiver Published: June 26

This has worked well for my mother during her breast/lung cancer. She is not nauseaous at all but her blood pressure can be very high to very low. She has lost hair and is very tired.

Related Reading: lung cancer

Comment from: Momcat 55-64 Female 1 to 6 months Caregiver Published: February 22

Horrible headache, stomach pain, feeling of weakness (low blood pressure, maybe) confusion

Related Reading: headache | low blood pressure


Lung Cancer: Early Signs, Symptoms, Stages See Slideshow

Medical Editor: John P. Cunha, DO, FACOEP

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