Phenobarbital

USER REVIEWS

Comment from: Grateful 75 or over Female 10 years or more Patient Published: April 19

I had grand mal seizures starting in 1957 when I became pregnant with third child. I was put on Dilantin which caused a lot of problems with my gums and did not control my seizures. I changed drs and was taken off Dilantin and put on 100 mg of Phenobarbital to be taken at bedtime. IĆ¢??ve not had a seizure since 1983 ( my 36th yr seizure free) I have no problems with teeth or gums, I sleep well, and I have not had to increase my dose. Far superior drug for me than Dilantin. I am 85- no bone problems.

Related Reading: dilantin | phenobarbital | seizure

Comment from: pamish67 45-54 Female 10 years or more Patient Published: December 29

I had my first seizure(grand mal)at age 15. After one year the doctors discontinued my use of it, chalking the seizure up to hormones. Within a few weeks I life changing grand mal seizure and spent 6 weeks in the hospital undergoing skin grafts and reconstructive surgeries. That was when the doctors put me back on phenobarb and officially diagnosed my epilepsy. I have taken this medication for 36 years now and my only seizures have been while I wasn't taking it. At age 51 I am just now experiencing some of the side effects, specifically bone/back issues, but it is worth the sacrifice to be seizure-free.

Related Reading: seizure

Comment from: Garvy 65-74 Female 10 years or more Patient Published: December 07

I've been taking this drug for over 30 years and now had a seizure due to being toxic. My doctor has put me on Keppra, what can I expect from this drug? Will it keep the seizures away?

Related Reading: seizure | keppra

Comment from: Susan H 65-74 Female 10 years or more Patient Published: August 18

I have been taking phenobarbital since 1983. I am now 69 years old. It has controlled my simple partial seizures very well, with few side effects. At first it made me sleepy, that I got over that long ago. Dosage has been adjusted a few times over the years, but I have been happy with the results.

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Comment from: glace 35-44 Female 10 years or more Patient Published: August 22

Works well no side effects been on for 31 years now tried other drugs and where not effect at all

Comment from: ramsxx 45-54 Male 10 years or more Patient Published: February 23

well had 1st sz at age 13,been on it for 38 yrs,until a doctor wanted to play god and twice refusing me the med(after 38 yrs of suces),and his refusal resulted in a 30,000 van roll-over,now I have to pay a nuero 150 twice a yr for a $11 drug,but it works for me,as my sz give no warning,feb 2015.

Comment from: faith 55-64 Female 10 years or more Patient Published: November 29

pheno was always used conjuctively with many other anticonvulsants since I was 17 years old gran mal. Over time (40 years) I found out that it was the phenobarb that was REALLY doing the job all by itself. If the activity increased , I added 30mg per hour (always within safe parameters) till the activity stopped. Then gradually reduced to standard dose. All the other meds have terrible side effects and huge dosages which. Phenobarb does effect bone mass, but at 57, I probably would have had the problem anyway. The alternatives were no less appealing, however, I have not had a gran mal in many decades with just this one drug. I agree with the other review. Old drugs don't necessarily mean bad. Each person is different with tolerances right along with it. Phenobarb does make you feel tired to one degree or another. Memory? well at my age its going the way of the dodo like all my friends. I just personnally feel we are overdrugged in general . Neurologists are doing their best, but my body gives me the info I really need. Help them to help you. Then, as epileptics, we only choose our poison. At least , we have that. God Bless

Comment from: sah 45-54 Female 10 years or more Patient Published: November 18

epilepsy

Comment from: bpperk 45-54 Female less than 1 month Patient Published: September 24

is it used to treat alcohol addiction

Comment from: christopher 55-64 Female Patient Published: April 28

im on 3 drugs at the moment Keppra Laosamide and now phenobrbital how can i tell which one is working!

Related Reading: keppra

Comment from: phenobarbital 75 or over Female 10 years or more Patient Published: August 27

I have been taking phenobarbital for 51 years and have never had any problems.

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Comment from: 25-34 Female 1 to 6 months Caregiver Published: August 19

This medication was prescribed for my Boston Terrier dog who was experiencing seizures. She was taking it twice a day, and did very well until a month after the first seizure and had another one, had to up her dose.. so far it just makes her sleepy but shes doing great on on this medication.

Related Reading: seizure

Comment from: freebrd06 55-64 Female Patient Published: March 21

It was given to me by my parents as an infant because they thought I was too much of a handful. I was hoping to find a negetive finding for giving to infants or toddlers!

Comment from: Lstrm 45-54 Female 10 years or more Patient Published: August 03

I have taken Phenobarbital for 28 years for tonic clonic seizures. Next week, I will be off of it after spending 3 years s-l-o-w-l-y reducing my dose with my neuro. It has a lot of positives. It works, is cheap, and is easy. The negatives are staggering, however. Phenobarbital is a major depressive. If you are on much of a dose at all, plan on also taking an antidepressant. It changes your brain chemistry. Forever. Studies were finally done in the early 2000s on its impact on the unborn. It decreases our babies in utero. Their cognition is decreased. Forever. The list goes on, but those are the "biggies" to me. Thankfully, Topamax works for me too.

Related Reading: phenobarbital | topamax

Comment from: N/A 35-44 Male 1 to 6 months Patient Published: July 13

Helps better than my max dosage of xanax and cloazapam both together.......not great, but more affective than benzos after the benis stop wrkng

Related Reading: xanax

Comment from: zerostate 25-34 Male 1 to 6 months Patient Published: June 16

Lately I have been taking this for clonic movements originated by stress at work. I had tried up to 4-5 different BZPs and they always stop working after a few monthsI don't want to up the dose anymore than I already have fpr valium, xanax, ativan, klonopin, et al; in case I get "out of it" and inadvertently damage something/hurt someone from inattentiveness. 100-300mg of this, taken every 2-4 days, helps to relax me and most importantly stops my stress-related spasms temporarily. I know there are alot of contraindications, and I use almost all of them, particularly alcohol (no more than 2 drinks day, usually drink six days of the week). I worried about contraindications including alcohol as well as other CNS depressants (e.g. BZDs, antihistamines, opioids(. Thanks!

Related Reading: stress | valium | xanax

Comment from: 7-12 Female 2 to less than 5 years Caregiver Published: June 01

This medication is for my Dachshund (canine) for severe seizures by her vet. She doesn't seem to have any problems but can this drug cause weight gain?

Comment from: jini 25-34 Female 1 to less than 2 years Caregiver Published: February 24

its very easy to use to my child..but after 2 years of usage,her eeg still abnormal.

Comment from: happy101 25-34 Female 10 years or more Patient Published: December 16

love it

Comment from: Dick 65-74 Male 2 to less than 5 years Patient Published: October 18

This drug has been a significant improvement over the medication I had been on for many years. No recurrence of seizures and no problem with droziness.

QUESTION

If you have had a seizure, it means you have epilepsy. See Answer

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Medical Editor: John P. Cunha, DO, FACOEP

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