Comment from: Samantha 13-18 Transgender 1 to less than 2 years Caregiver Published: July 27

I took rituxan 20 years ago over the last three months ive been fighting infection after infection and have damn near lost my life due to this drug depleting antibodies we where never warned that ID lose antibodies that ive been vaxed for such as mmr chicken pox shingles And all my other childhood shots I now have had to get a transfer of igg antibodies for the rest of my life

Related Reading: rituxan | shingles

Comment from: Bobbie Transgender less than 1 month Caregiver Published: July 06

My son died because of this medication

Comment from: mr haha 65-74 Male 10 years or more Patient Published: January 13

I have had RA for over 30+ years. Used gold treatment, prednisone therapy, Enbril, Methotrexate, all served a purpose at the time taken. In 2010 I was operated on for removal of a Follicular lymphoma blockage of the small intestine. After surgery, I was informed I could no longer stay on Methotrexate because Methotrexate raises your risk of malignant lymphoma. Since then I have been taking Rituxan and have been doing quite well. I worked as a property manager for a year after surgery and am now retired. Since retiring I kept myself busy as an on-site superintendent at a 36 unit complex, purchased a 1500+sf home in 2016, renovated the master bath, kitchen, painted the interior and installed 600+sf of vinyl plank flooring. In July I will be 75 and still going strong. For me I think Rituxan is five star medication.

Related Reading: treatment | prednisone | rituxan

Comment from: Katzy 55-64 Female 5 to less than 10 years Patient Published: November 21

Been taking for five years. Hardly any side effects, feel good most of time no flares since starting this am I'm on maintenance dosage now. Now every 6 months

Comment from: J S 45-54 Female 1 to 6 months Patient Published: November 15

I had my 4th infusion on Nov. 1 and have had positive results. Some side effects but the blisters have slowed down.Dr will add 2 more weekly then monthly for 7 months. Iâ??m hopeful for more relief and hopefully remission. Good luck to all going through this treatment.

Related Reading: treatment

Comment from: J S 45-54 Female 1 to 6 months Patient Published: November 05

I had my 4th infusion on Nov. 1 and have had positive results. Some side effects but the blisters have slowed down.Dr will add 2 more weekly then monthly for 7 months. Iâ??m hopeful for more relief and hopefully remission. Good luck to all going through this treatment.

Related Reading: treatment

Comment from: Karen 55-64 Female less than 1 month Caregiver Published: August 08

Has anyone experienced extreme thirst after their second treatment? I am asking for my Mother.

Related Reading: treatment

Comment from: myra1951 65-74 Female Patient Published: January 25

Started infusion mid december & two weeks later. After first infusion in mid december I felt energized and no pain the first day. It's been about a month now & still feel ok except I started to have some finger stiffness & mild knee pain. Not very severy knee pain. Hopefully it will continue to make me feel better. I'll see Rheumy in 2 weeks for a follow up. Feeling better with Retuxin after trying Remicade, Orencia, & Actemra with no relief. Was tired of taking prednisone for my flareups. Orencia worked for 9 years and the second time after Actemra, nothing.

Related Reading: knee pain | remicade | orencia

Comment from: CJ 65-74 Female 1 to 6 months Patient Published: January 05

My oncologist put me on a weekly program of rituxan and at the conclusion of my series of weekly treatments it had allowed me to go into remission. I will be watched closely since this type of cancer has a high rate of return. During my course of treatments I had different reactions weekly. Anything from chills and uncontrollable tremors to dizziness, closing off of throat and always tired afterwards. Nausea the whole time and even after the treatments the infections have been several but each day I get stronger. Although, none of it was fun all worth it to be in remission and the nurses that administer the drug are very capable and compassionate in caring for each of us and helping us thru it.

Related Reading: rituxan | cancer | tremors

Comment from: Alvina Gomez Thompson 55-64 Female 5 to less than 10 years Patient Published: November 14

I did have a reaction to the first treatment but I I have no issues now. I started using when it was experimental. My doctor had suggested it and after months of being misdiagnosed and tons of different vist I said let's do this. I was miserable and in pain. I experienced muscle a d joint pain for a few days after my treatment a d tingling in my arms but it always goes away. I definatly feel better and have few flare ups.

Related Reading: treatment

Comment from: dan 45-54 Male 1 to 6 months Patient Published: October 29

it takes up to 6 months before this drug starts working, for me I noticed an improvement after 3 months !

Comment from: bporlando 55-64 Female 5 to less than 10 years Patient Published: July 31

I was originally prescribed Rituxan for Non-Hodgkins Lymphoma and it put my RA into remission as well as my cancer. I call it my miracle drug because my RA is very well controlled and I am able to do most anything I set my mind to. I would highly recommend this drug.

Related Reading: rituxan | cancer

Comment from: Saved 1 45-54 Male less than 1 month Patient Published: February 19

For me this drug was horrible. I have had RA for around 6 years and been in treatment for almost 3 years. Until recently it has been search for something that worked for me without intolerable side effects. Early in treatment we found something that worked very well but side effects were not good so we kept searching. I tried everything but nothing worked to relieve pain and the usual other symptoms. We tried Rituxan and wish I had not. After the 6 hour infusion tiredness was the first symptom later that evening, the next day extreme exhaustion sleeping around the clock. On day 3 sleeping but like sinking into blackness like anesthesia before surgery, slept for about 18 hours. on day 4 I barely knew my own name and memory was almost non existent. I had enough of this so I had my wife call my DR.who then sent me to the ER. It took about a month to get the medication out of my system the whole time having fatigue and memory problems. I told my DR. that i was almost done with the RA meds , she asked me to try one more and i'm glad I did, it was Xeljanz and it started working very well from the start and it just keeps getting better. I actually thought Rituxan was either kill me or cause permanent damage. that **** took me places I never wanted to go.

Related Reading: treatment | rituxan | fatigue

Comment from: RT 75 or over Female less than 1 month Patient Published: December 22

I had two injections. Probably will not continue. I have burning in my eyes, sore throat with fungus infection, constant flushing with red face. I am very tired. Overall not feeling well. Will talk to my rheumatologist about above, but I do not want to go through this again. If anyone else is going through same, let me know by writing your review.

Related Reading: sore throat

Comment from: Mmurray 45-54 Female less than 1 month Patient Published: December 15

I've had RA for 29 years. I have tried so many medications before rituxan. I had my first infusion yesterday. I was in a wheelchair, my husband dressed and bathed me. Just in 24 hours I showered and dressed myself this morning. I am slow still but I did everything without help. Didn't need my wheelchair, I put on my leg brace and grabbed my cane and walked into my orthopedic appointment today by myself. I still have pain but nothing like I had 24 hours ago. This drug helped me so much. Before my infusion my doctor gave me benadryl, Tylenol and steroids and I had no reactions. I was sleepy because of the benadryl which was fine cause I don't sleep much at night. I was very nervous about starting this medicine but I am so excited for my second dose in January. Well wishes to everyone.

Related Reading: rituxan | benadryl | tylenol

Comment from: obrien 45-54 Female 5 to less than 10 years Patient Published: August 31

I was diagnosed with RA when I was 21 years old I also have lupus. I have suffered over 25 years with trying just about every arthritis drug there was when on disability when I was 48 just cannot work more. They found a rheumatologist Dr. Burke was I have had the Tuscan infusions for six years and I can't tell you the difference it has made my life I've gone back to school graduating with my bachelor's degree in behavioral science I plan on going back to work was enough for the Rituxan none of this would've been possible. So thank you very much for this drug although it's very expensive.

Related Reading: lupus | arthritis | rituxan


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Comment from: 35-44 Female less than 1 month Patient Published: May 30

I was diagnosed with RA when I was sixteen, so almost 21 years ago. I have tried EVERYTHING. I have been on prednisone for over 6 years now. The Remicade helped a lot, but quit working after a few years. Rituxan is one of my last options. I have severe migraines usually, and it seems that they have intensified on the medication. I have had the two starting doses. Between the migraines and severe nausea, I have been in bed most of the time. Not sure if it is worth it. Going to be talking to a neurologist to see if it is the Rituxan making it worse. Does anyone else have these problems? My RA is very severe. I have been on disability now for 5 years. I also take Tramadol and Phenegran to help, and I take Simvistantin for my migraines. It just seems like I'm taking more and more medication when I was trying to take less. So frustrating. I am hoping the nausea will get better, and that my migraines will become manageable again because as of right now, I don't feel like I am even living. One doctor told me that I would just have to choose between a life of pain or a life of medication with side effects.... VERY depressing news.

Related Reading: prednisone | remicade | rituxan

Comment from: Shyla22 25-34 Female less than 1 month Patient Published: February 22

I went into my first infusion with a little bit of problems, but the second dose was a little bit worse. I experienced major fatigue, whole body hurts and it's making it hard for me to function because of brain fog and it is hard to concentrate to do what I need to do in physical therapy. It has not been a week from my last dose so hopefully things get better over time.

Related Reading: fatigue

Comment from: 55-64 Female 1 to 6 months Patient Published: November 15

I have stiffperson syndrome for approx. 10 yrs,. It is an autoimmune disease,1 in 1 million people can get, which affects muscle function. I use many other medications but Rituxan IV has relieved me of most pain for numerouse months for the past year.

Related Reading: rituxan


Medical Editor: John P. Cunha, DO, FACOEP

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