Comment from: 35-44on Treatment for 6 months to - 1 year Published: January 05

Undoubtedly this is very effective medicine for most peopled. Some, such as myself suffer intolerable adverse effects. Initially I had hallucinations and felt very disorientated to the degree that it was dangerous to prepare food or drive, and it was impossible to sleep. This went away after a few days but the feeling of being detached from my surroundings and the visual disturbance persisted. I changed the timing of the dose to the morning but this meant that 3 or 4 hours after the dose were spent in a state where it was difficult to think clearly and explain to doctors and other support workers what I was going through. I felt like I was wrapped in cotton wool, but very anxious and guilty for no rational reason. Sleeping was difficult, and got worse to the point where 2 hours a night was the best I could hope for. The worse thing was that it was difficult to commicate what I was going through, in the end I just refused to take the medication any more.

Comment from: jeffrey Published: September 30

good no problems

Comment from: john45-54on Treatment for 2-5 years Published: June 25

I've used this med along with Epzicom for almost 5yrs. At first I took my med's in the morning, it left me somewhat out of it but it was effective. After about 6 month's I begin taking my med's at night and that help a lot, still have some vivid dream's but I can handle that because I'm staying healthy.

Comment from: Faithful97835-44on Treatment for 6 months to - 1 year Published: March 23

I took this when it first came out in clinical trials. I didn't have issues just dreams sometimes more real or lucid. I could handle it but my doctor switched to something newer.

Comment from: 45-54on Treatment for 2-5 years Published: October 11

Comment from: Doc45-54on Treatment for 5-10 years Published: February 28

The month Isentress was available, I switched. Sustiva dealt with the HIV well, as does Isentress. BUT the side effects of neuropathy, high blood trigs, resulting high blood sugar, high blood pressure wierd dreams that sustiva gave me, kept me looking for an alternative. I changed the other meds 3 times before changing the sustiva to Isentress. Since then, my life has been much more normal and my piano playing is better than ever. Thank heavens the side effects did wear off after a month or two.

Comment from: Tuto35-44on Treatment for 10+ years Published: May 26

I used this medication for period of 10 years more o less, i do stop using it because starting some side effect...people cant hug me,cant sleep.etc.

Comment from: 45-54on Treatment for 10+ years Published: July 15

I have vivid dreams, but I manage. I've taken this medicine for 11 years.

Comment from: jimsit65-71on Treatment for 2-5 years Published: February 24

I would say 100% satisfaction. However, when I went on the drug approximately 2 years ago I gradually became more pale and my blood vessels became smaller and harder to find by phlebotomists. This was so noticeable to the drawer that they would almost always mention it and have to use a smaller than normal needle. I don't know that Sustiva caused this condition per se. I do know that it began with my first draw after starting Sustiva. I may choose to stay with the drug, however, as it works beautifully with no side effects except this strange disappearance of my veins and paleness of my skin.

Comment from: RicknDC55-64on Treatment for 5-10 years Published: April 17

While I experienced dizziness when I first took Sustiva (along with Ziagen and Epivir); this disappeared after about 2 weeks. No other side effects and in conjucntion with Ziagen/Epivir initially and now with Epzicom my viral load has remained undetectable and my CD4 count and CD4/CD8 ratio have been high for over 7 years now. The only complaint is the ever-increasing price.

Comment from: sad35-44on Treatment for 1-2 years Published: April 14

it is working for me, except for the weight gain. The biggest issue is the amount it costs me to refill every month, i struggle to get it some months. I was hoping to out if there is help with copays for my meds.

Comment from: Steve35-44on Treatment for 5-10 years Published: February 20

I have been on Sustiva for six years. It has been very effective, however, the side effects suck. I have morning nausea on a daily basis, along with trouble sleeping. I won't go off of it, however, because it is working.

Comment from: leetown55-64on Treatment for 5-10 years Published: February 03

i have been on Sustiva for a bit over 5 yeas, in combination with Viread and Ziagen. other than some strange dreams, i have had little or no side effects from this medication and i have been undetectible for nearly 5 years now.

Comment from: 55-64on Treatment for 5-10 years Published: November 20

I have been on sustiva for 5 years now and aside from sometime odd dreams(though not nightmares} it has been wonderful in keeping my aids under control. I never miss a dose, that could be a factor.

Comment from: jboogie19-24on Treatment for less than 1 month Published: April 03

felt sick at first and not really wanting to eat much .Going to the bathroom alot but ok .

Comment from: 35-44on Treatment for 1-2 years Published: January 28

I experienced a lot of nausea, fatigue, night sweats & nightmares with this drug. It works well but I wasn't able to live with the side effects. I switched to something else and feel much better.

Comment from: tw35-44on Treatment for 1-6 months Published: November 13


A Timeline of the HIV/AIDS Pandemic See Slideshow

Medical Editor: John P. Cunha, DO, FACOEP

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